Me again hopefully some advice

  • 18 replies
  • 148 subscribers
  • 638 views

Hi how do people cope with all the waiting around im a very anxious person anyway and all this is stressing me im on my own a lot of the time so no support 

I am supposed to be having a hysterectomy on the 6th jan but im waiting for my biopsy for my tongue and not sure which to dealy the ent said can do the biopsy local but of inconclusiveor cant do it wud have to be general sp cant really be having 2 anathetics  ..the ent did say it didnt look suspiciois and was a cyst then notes said slight assymetry base left tongue so im all confused i also have seen that some people eho have tongue cancer also have earache and i have this on and off 

Im not sure what to do aboit my op everyone saying have the op then do the biopsy when recovered but what if the tongue is more serious even though he did saynit dosnt look suspiculioud what are all your thoughts ,the thought tongue cancer scares me 

  • He did mention a cyst to me and said it didnt look suspicious could a cyst be why ?

  • He never mentioned that to me je said he thought it was a cyst and didnt look suspicious 

  • He also told me to drink more water for the rongue whaich was strange 

  • Both my dentist and surgeon told me they compare the sides of the tongue with each other to kind of establish a base like for "normal". Mine was asymmetric and had an abnormal lesion in the back side of the tongue. 

    The first surgery which my 2nd surgeon thinks was more than a biopsy took about 1h. 

    I recovered within 2 weeks and was speaking and eating normally. My second one I was told was 30min-1h. It's been almost 1 month and I have some inconvenience but the second surgery was much more extensive. 

    I am still back at work and talk for a living, mostly. 

    Hope this gives you some idea.

    *****

    Non-HPV tongue cancer T1N0M0? 
    Diagnosed Nov 2024.

  • What was your diagnosis im told i have a cyst and he said didnt look suspicious

  • I totally feel your stress. Too much going on for you at one time. If I was you I would call for emergency appointment with your GP and tell them exactly what you’ve told us.  They need to help you navigate and get both depts working together so you’re not trying to work this all out on your own. X 

  • I cant see a cyst bit maybe its at the back ..oh i dont know i also diabetic so its all not helping st all  kero thinking life over snd what a great start to 2025 im going to have 

  • There is no mention of a lump just the asymmetry he did say a cyst to me but it's not mentioned in the letter he wrote to the dr