Nasopharyngeal carcinoma Squamous-cell carcinoma full neck dissection

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Hello everyone,

im new here I’m just in desperation is there anyone out there that has had the above and still surviving.

i had chemo and radio for nasal cancer 2019

Full neck dissection 2024 for cancer in cervical lymph node which was from nasal cancer, had both tonsils removed and back of the youngest these were no cancer in them.

i was fine from January till August and now I’m getting massive head aches day and night over my affected side above the eye.

pretty must doing my brain.

just wanted to know is there anyone had what I have or like me still living and how long ago.

sorry if I’ve mad a bit just going through bad things at the moment.

cannot seem to talk to anyone in the same boat and internet stuff scares you to death.

im 64 years of age female.

  • Hi Mrssc

    I am so sorry to hear about your situation. I do hope that the reason for your headaches can be sorted out. You have already been through such a lot. I have not had the same cancer as you but can empathise with your worries. I had jaw cancer which started in 2013  when I had a mandibulectomy then another 2 ops for more jaw cancer in 2019 and 2022 when I had maxillectomies. I have had 2 lots of radiotherapy plus neck dissections on both sides of my neck at different times. I am currently on a 5 year watch and am still going strong living my 'new normal'. My cancer journey started when I was 59 and I am now 71 so there is definitely a long life to be lived so don't give up.

    Do you have an appointment with your consultant to look into the cause of your headaches? You need a definitive diagnosis and then a treatment plan can be put in place. Early diagnosis makes all the difference. Fingers crossed that there is an easy solution but you will get lots of support from this forum if you do have to go down the treatment path again.

    Sending you hugs

    Lyn

    Sophie66

  • i was fine from January till August and now I’m getting massive head aches day and night over my affected side above the eye.

    Oh that sounds absolute rubbish. No wonder you are at your wits end. Sorry I can't help personally but Hugs.

    Are you back with your consultant. What have they said?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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