Supporting partner

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Hello, I'm new here. 

My partner was diagnosed with tonsil cancer which has spread to his tongue and lymph glands in his neck in July this year. It is HPV16+  He is in the process of undergoing 6 gruelling weeks of radiotherapy. He has just passed the halfway mark...yippee! He had a RIG inserted 2  weeks ago which he's having a few issues with as uncomfortable around the area it goes into his stomach and sore there. He's losing weight each week as he's struggling to eat due to a mouth full of ulcers, inflamed throat, everything tastes of metal and a complete lack of appetite! I'm really struggling with trying to encourage him to either eat and drink the protein drinks he's been supplied with which I know have the texture of mucus! I'm so worried about his weight loss and the mask not fitting as I know that's important whilst he's having radiotherapy but also for his on going health its important to keep his weight up. Any ideas or tips as to what to suggest eating. What he is eating is miniscule in terms of actual food, bit of porridge, yoghurt, sift tinned fruit, small bit of scrambled egg.  He's not doing the mouth exercises he was given as it hurts but was told to at least try to keep up with eating something which will help. I know it's horrible what he's going through and I hate seeing him like this but I feel helpless and overwhelmed.  Sorry to have rambled on..

  • Thank you for your sound advice. Yes we both  expect it will be a long road to recovery after treatment finishes and not to expect too much too soon. 

  • Hi As others have said he needs to be using the rig  more ask tomorrow. It’s there for a reason I went 6 weeks without anything going down my throat but week 3 of recovery I was able to swallow the ensure drinks so my ng tube  out. If the does the exercise’s albeit he might not feel like it it will tell him. But sufficient nutrition is vital as well as hydration and his meds when needed. It does take the worry and strain away. 

    hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Has anyone had thick mucus at the back of throat and in your mouth during radiotherapy? My partner is struggling with clearing his throat because of it. Any recommendations.  

  • Hi yes I’ve got this now & i haven’t started treatment yet, still looking for a solution,

  • Hi yes we almost all do. I used a humidifier in bedroom bought off Amazon and a nebuliser up  to 6 times a day and night. Plus pulled the mucus out with fingers if needed to constantly dost into tissues as well. I was prescribed carbusistine to helping uf after treatment finished. First really do much. I also rinsed mouth   with salt water and bi carb. 
    for me I had it around 10 weeks after treat as well it went as quickly as it came replaced with dry mouth which is another story. Sll

    i can say he let his team know they may prescribe caphosol. My trust didn’t some say it helps as well. 
    good luck 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • i can say he let his team know they may prescribe caphosol.

    Caphosol is best as a buffer to help prevent mucositis not to treat active ulceration. 
    I think that’s why it doesn’t work for a lot of people. It’s simply not prescribed early enough. 
    When I asked about it ( after reading about it here) I was told I would get it if my mouth ulcers got bad. Crazy that some clinicians don’t actually know a drug’s specific indication 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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