Hi

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I am new to this forum. I had mouth cancer last October. I got a tumour removed then had radiation and chemo..

I now have it back but the tumour has come out under my first cancer on my neck. 

They are suggesting immuno therapy possibly a trial.

It sounds like they are just keeping me alive for the duration of the treatment.

  • It sounds like they are just keeping me alive for the duration of the treatment.

    No. Immunotherapy is hugely expensive. If your oncologist didn’t think you might benefit then you would just be in standard chemo. Do give it a go. Some people do really well on IT. I have a friend who is stable on Nivolumab which he has had for five years. 
    We have a forum member here   who is NED after two years of Pembrolizumab 

    He’s a personal friend of   who can probably attest to how well he is doing. 

    So sorry you are facing this again but don’t give up. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi  I've really sorry to hear about the return of your cancer. As   mentioned, if you are offered immunotherapy, and you have the right biomarkers, it is certainly worth giving it a go. In comparison to chemo, the side-effects are generally not as severe, although there is always a caveat in that serious reactions can occur, but you would be well briefed on the warning signs beforehand. I had two years of Pembrolizumab for Stage 4 head & neck cancer, and thankfully responded really well. I'm currently not on any treatment. 

    If you want any more information, don't hesitate to contact me here. Like others I've also kept a blog on my experiences with CRT and then immunotherapy that may help you with information. https://ansmackay.wixsite.com/uclgeography/blog 

    All the best, Anson

  • Thanks Anson for responding 

    We all help each other 

    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • if you are offered immunotherapy, and you have the right biomarkers, it is certainly worth giving it a go.

    Thanks  

    I hope you didn’t mind me tagging you. It isn’t always as hopeless as some imagine. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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