Hello

Debbielouise, many thanks. Appreciate the advice. 

Hi Dani If I so use Google I try to find articles that are in plain 'english'.  They are normally few a few apart or I end up more confused with the jargon so this forum is great for members to ask a question and get a straightforward answer.   

Hey there,

I had a hemiglossectomy, with reconstruction and a neck dissection in 2020 having had a “clean” biopsy of a lentil-sized lump in my tongue 2 years earlier.

I won’t pretend that it’s an easy process but it’s absolutely doable.

I have prepared a “document” about Diagnosis and Surgery - no holds barred; I wanted to know everything I could! Add me as a friend and I can send it over.

An ng (naso-gastric) tube is normally used for 7-10 days post op to by-pass tha area operated on. With a reconstruction, the hospital stay is normally 10-12 days.

Any further treatment will depend on what the analysis of the tumour shows. If Radiotherapy is required, then that can be hard too and an alternative form of keeping you “fed” might need to be considered, but don’t think that far ahead quite yet.

if you’re of working age then I’d recommend Young Tongues. There’s also The Mouth Cancer Foundation Support Group both of which you’ll find on well-known platforms 

Very many thanks. It's great to meet you. 

Mick 28.12.22 said:

Hi Dani If I so use Google I try to find articles that are in plain 'english'.  They are normally few a few apart or I end up more confused with the jargon so this forum is great for members to ask a question and get a straightforward answer.   

True.  Scientific articles are written in their own language. This forum is a godsend. 

Talking about  plain English I  really should proof read my messages lol 

 It’s ok it was perfectly understandable. 

I’ve “Requested Friendship”.

I think you’ll need to accept if you want me to send anything over privately 

Hi Ginge

Sorry to hear about the recurrence after such a long time. I know it can be demoralising having to go through surgery again. Like you I had a recurrence in fact 2 after my initial op (jaw cancer so not the same as yours). 2013,2019,2022. I had more ops and another lot of radiotherapy. However am now doing fine and back to enjoying my life again.  It is tough having to go through treatment again but the alternative is not appealing. I decided that I just had to put my head down and get on with it. I am forever grateful to all the support I have received from this forum as everyone is so encouraging. You are in good hands with your medical team.

Wishing you all the best.

Lyn

Many thanks for your encouraging words.