Hi. Just joined this forum, surprised how many people have same issues/diagnosis.
it started with what I thought was just a sore throat and excessive snoring. After a few months finally booked appt with GP. MRI/CT PET scan biopsy - diagnosed with P16 + squamous cell carcinoma of left tonsil and neck. pT1 pN2b M0.
Surgery - robotic oropharyngectomy and left neck dissection.
Now recovering but still have very sore throat and difficulty eating/swallowing and limited movement on lower lip. I’m sure this will improve eventually.
Radiotherapy starts end of June 2024, 5 weeks.
Not looking forward to that.
Male 62 with very supportive wife and 2 children (21 and 24)
Welcome but sorry to see you here I’m Dani and I’m over five years clear of HPV + throat cancer . Doing really well and fairly normal
Radiotherapy starts end of June 2024, 5 weeks.
Not looking forward to that.
RT is a challenge but all side effects can be mitigated. My advice is to do as your team tell you. Don’t be brave and tell your RTteam if you are in pain. You have nothing to fight, remember. That’s the oncologists job. You need to keep body and soul together
Stay with us. There’s lots if help here
PS. Are you having a stomach tube fitted?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi
Sorry you have had to join our little club but I hope you will be glad you did the support on here got me (and many others )through the treatment which was very challenging.
As you have already spoken of a very sore throat and difficulty eating/swallowing it would be a good idea to discuss some form of feeding tube with your team as due to radiotherapy all of the issues you already have will probably feel worse.
Treatment is hard but you will get through this with the support of your family and hopefully a great team around you.
As said previously there is never a silly question to be asked either on this forum or with your Hospital team .Tell them if your in pain /any new symptoms or your current medication isn't helping so they can support you further.
All the best for the end of June.
Debbie
Age 56 (T4 2NB HPV positive) 7mths post treatment .Enjoying every day( even the bed rest ones
)
