Hi Diagnosed today

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Hi all 

I've had my diagnosis today for squamous cell carcinoma in my neck so awaiting the start of treatment.

How long did you have to wait before start of treatment from diagnosis?

Thanks 

  • Thanks for your reply Pray

  • Thanks Ray I will go for the peg or the alternative they may offer 

    Thanks also for welcoming to the group along with all the rest of the lovely people who have replied to me  Pray

  • Hi I was diagnosed 6 June treatment started 14 July 2018 here I am almost 6 years later living a great life. Welcome from me. Amy question s just ask. Blog below might help you. Treatments hard but I did it I was 61 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • Hi. They had a cancellation so I waited a week instead of a month. 

  • I had the same experience before I was diagnosed.

    Try not to worry about work .I phoned Mcmillan(s line for  financial support as I was worried what would happen after sick pay ran out.

    My Mum (75 at time) had to help me fill in ridiculously long PIP form  and Job centre Coach on phone advised me to go on Employment Support Allowance (There is also Universal credit which seems to be a better option for some people).

    Your local Cancer charity will also have people to help face to face or via the phone to fill in application and offer advise

    Mcmillan also offer a free £200 grant to cancer patients who qualify (criteria on website)your Cancer Nurse Specialist(CNS) fills in the application for you. x

    Debbie 

  • Brain whizzing is normal ! 

    Try and keep that anxious brain busy do the things that you enjoy  watch  boxsets/ films etc 

    Get some fresh air if you can and eat lots your favourite foods x

    But please  stay off Google any questions ask this group , they helped me with every question I had  and gave me invaluable advise. Nurses were amazed at my medication knowledge( thanks to Dani and Hazel.) .

    Keep us updated x

    Debbie 

  • Good old cancellations PrayPray

  • I think I wore Google out before yesterday lol Laughing 

    Yeah Google can make the whizzy mind more whizzy 

    Been for a little walk to get some fresh air with the dogs Dog2 Dog2 

    Turning out nice now Relaxed️ 

  • Fab thanks for that information 

    I will keep that at the front of my mind as work has not been very supportive my boss has been great it's the HR dept seem to have a problem 

  • I have been looking at your blog 

    You are doing amazing getting out there and travelling this disease has not stopped you from enjoying life 

    It's such a positive blog 

    Thanks Pray