Tongue pain post treatment

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Hi I'm new here and my partner has recently completed chemo and radiotherapy for tonsil cancer that is also in back of tongue. (Feb 16th actually) he's doing really I think considering, he has already reduced morphine and is only taking pregabalin and paracetamol.  The pain he says has reduced to about 4/10 over all so I think he's very luck after reading what everyone else has /is going through. The thing that gets him atm is tongue pain, I think probably ulcers, he doesn't want to go back to morphine for that but as he is trying very hard to eat 'real food' it's proving a real setback.. . I was wondering how long it takes others for these things to heal. Personally I can't believe how well he's doing but this issue is really really getting to him. Any commemts on this would be gratefully appreciated

  • Hi 

    Well done to your partner on eating so soon after treatment 

    Try swilling Difflam or soluble aspirin before  trying to eat and keep a note  of what foods are more gentle   

    My ulcers persisted for months but I could eat pretty well at 12 weeks. It’s really just a question of time. 
    He will get there but it’s slow. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thank you for that, I think part of it is knowing it's not (hopefully) going to last forver..

  • Recovery for most of us is really two steps forward one back and there are days when it’s pretty difficult. Don't get disheartened. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi I had ulcers full length of my ti gie for a good 3 months. Introducing new foods can irritate as well. Dani’s suggestions can help   I started week 3 eating normal foods but only soft food poached  eggs custards etc it was a good while before I ate a normal 3 meals a day. You  need to watch out for oral thrush as well as that can cause pain. It doesn’t last forever but it’s also a marathon not a sprint make sure he’s getting around 2500 calories daily his body needs food to heal. I supplemented with the 2 kl bottles if ensure which made sure I had enough calories going in. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help