Head and Neck cancer/ Multiple Lymph Nodes cancerous

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Good morning everyone...

hope this email finds you bearing up with your condition and hoping for a good outcome, and trying to all be positive

I was diagnosed with the above only a week ago, and I am a complete mess at the moment..as I'm sure we have all been initially.

This will sound unbelievable to most of you , but I am not handling it well and can't seem to stop smoking or drinking  which almost certainly caused my condition. I know they say to stop right away, and definitely not right before radiotherapy etc, but it seems stop me from going to pieces..

Non-smokers reading this will be horified reading this I'm , and understandably so...so directing this at those who are having/had the same issue..In my head the damage is already done , and another couple of weeks before my treatment starts surely would not make any difference...

Advice and input warmly welcome, whatever your view

thank you ....Dana Smith

  • Hi Dana. 
    as an ex smoker myself I do understand how you feel. Can you contact your GP to ask for help. Considering your circumstances they should be there for you. You could discuss antidepressants and sleeping tablets while you’re there. Lots of people found the solution that way. 
    As you say a couple of weeks won’t make much difference in the greater scheme of things but continuing will severely impact your treatments success so please get round to your GO and make a start. 

    This will sound unbelievable to most of you , but I am not handling it well

    No. That’s not unbelievable. We all react differently and many of us were in dire straits mentally at this stage. We understand. The lack of control. The fear of the unknown. The fear of dying. Oncology teams have been treating thus cancer for a long time. They are good at it and outcomes are good too. 
    Keep busy. Call on your friends and family to cry in their shoulders. Come here to rant and rave. It’s hard and treatment is challenging but we are all here for you whenever you need us. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Dana,

    Im so sorry about your recent diagnosis youve found the right place for support x

    Nobody is here to judge you wether you smoke drink or do a naked can can round the garden everyday x

    We are all here to try and support each other … where you are right now was the  hardest part for me I felt like I was going mad with anxiety and fear of the unknown. Its all normal weve all been there and its bloody scary !

    The best advise is stay OFF google it will only make things worse and yry and keep that anxious brain busy do the things you enjoy eat your favourite foods binge watch tv or films or whatever it is you can do untill your yreatment begins and hopefuly the anxiety willl subsides.

    Its a hard journey Dana but believe me if I can get through it anyone can ! xx 

    Come on here when you want to ask any question, have a rant or need a virtual hug x This little group are fabulous and will be with you all the way.

    Debbie x

    T4a3NbMO 

  • PS don’t Google. There is a huge amount of out of date and alarming information You look for info to tell you that everything will be ok but all you find is stuff that condemns you even deeper. Best left. Ask here and your support stuff 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi...how did you manage when they diagnosed you? Did you stop right away?

  • thank you Debbie..good advice 

  • I had given up some years previously Dana. I was just saying that I know how difficult it is to stop and it must be a million times worse when you’re under such stress. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Dana welcome from me do t berate yourself. Too late now try to stop smoking see g o for patches to try to help. Keep off Dr google you’ll only  scare yourself more than you are already. You found us on here now stick with us. No questions to Little ask there’s a few other new people and you can maybe try and help each other. It is the fear of the unknown and once you get your treatment plan everything honestly falling into place I can’t lie treatment hard it’s pretty brutal but I’m 5 1/2 years past Radio and chemo for tonsil cancer with seven affected lymph nodes And I’m happily living in my life  

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • thanks you and others are inspiring!

  • Hi Dana, sorry to hear of your diagnosis, it is very hard and knocks you sideways at first. You will start to feel better about it all once you have your treatment plan, and even more so when your treatment starts. As for smoking nobody on here will judge you for that, I smoked for many years, and gave it up over25 years ago, but I still remember how hard it was to do. As others have said, see if your GP can help, I'm sure you can get things to help, on prescription now. Stick with us we're all here to help.

    Ray.