newbie

  • 21 replies
  • 153 subscribers
  • 1240 views

hello i am newly diagnosed, after a botched tooth extraction, by an idiot dentist, the root was left behind, so i had infection after infection, which has now turned into tonsil cancer, i unfortunately thought it was just another infection, so was put on antibiotics for 3 months, until my gland started to swell up, so i have eventually had all the tests and was told friday tonsil cancer that has gone to my glands, like most people who are diagnosed, i am petrified,  i have an appointment next week with the oncologist to either tell me i can get treatment or not, being in this limbo is so scary as your mind obviously goes to the darker side of things, i cry a lot, have a lot of panic attacks and feel angry that one stupid dentist could have caused such a gigantic ripple effect for me.

one of the worst things i am finding, is people being rude to me, i cannot deal with it, i either feel rage at such stupid rude individuals or vulnerable and start to cry, do others have these same experiences? a roller coaster emotional thing going on, triggered by others behaviours, sadly, where i live the the place is populated with people who have never been taught how to communicate with others, one last week was in my face shouting at me being abusive and intimidating, so i told him to leave me alone as i have cancer and he started mocking me for it, how do others deal with such appalling behaviour?

  • Wow! Never heard such appalling behaviour! Personally knee them where it hurts and let them know karma is a female dog.. Ignore them  (which is hard) and you will find out who your true friends and family are and they will support you

  • What , that’s disgusting behaviour have you spoken to any of the macMillian   Staff I’m sure they would give you advice 

  • Oh  what a sad state of affairs. 
    I despair at some people. 
    But let’s start somewhere. 
    First. The infection caused by your retained root has not caused the cancer. It has however masked symptoms and maybe delayed things a little. 
    Second. Tonsil cancer which has spread to your neck lymph nodes is caused by infection with HPV some time in the past. In fact lymph node swelling is the classic presentation. The good news is that this cancer is very sensitive to radiotherapy and is curable in over 90% of us. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • one of the worst things i am finding, is people being rude to me, i cannot deal with it, i either feel rage at such stupid rude individuals or vulnerable and start to cry, do others have these same experiences? a roller coaster emotional thing going on, triggered by others behaviours, sadly, where i live the the place is populated with people who have never been taught how to communicate with others, one last week was in my face shouting at me being abusive and intimidating, so i told him to leave me alone as i have cancer and he started mocking me for it, how do others deal with such appalling behaviour?

    I can read the absolute terror in your post. You think you are going to die horribly and nobody cares or understands

    We, here do. Just leave those folk behind and talk to us here while you wait. There’s somebody around most of the time and we don’t care how you rant and rail because we’ve been there. I was in the same place as you  I’m five years clear now and living my life well, if not better than before 

    Please give the support line a ring. There’s a friendly understanding voice at the end of the line. 
    Stay and talk to us here too

    Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Ichi

    Sorry to hear your news & the people you are having to deal with, you understandably have a short fuse with people because your whole life is in turmoil - I think this is understandable.

    A ridiculous thing to say but try not to worry about the cancer as you will be well looked after by the specialist & you will meet some truly incredible  people on this journey & find out just how wonderful people can be. It has been said by others that you stand every chance of this being just a bump in the road but lets be honest it will be tough at times but thats what friends, family & we are here for.

    So buckle in & meet this head on because you will find you have more resolve in you than you ever knew! YOU CAN DO THIS!

  • put on antibiotics for 3 months

    Can I just add that this delay won’t matter much. One if our forum members Hazel,  spotted her swollen lymph node while she was on holiday, thought it was a pulled muscle and left it for a long time to get looked at. She’s well and kicking five plus years later. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hello Ichi, I am so sorry to hear what you're going through. I hope you have some good friends and/or family who will be sympathetic. I know it's terrifying at the moment, the uncertainty is awful. Once you have a full diagnosis and a treatment plan it gets a bit easier and you just get through it.

    You clearly had a horrible time with the dentist but please be assured that it didn't cause your cancer. It's probably related to HPV which is a virus that most people have had that never causes any problem, just some of us are unlucky, years later - your oncologist should explain this. 

    Many of us on here have come through treatment and are now living well - me for example. Trust in your NHS team - assuming you're in the UK - they are the experts. You can get through this! Please keep in touch on here, it's such a supportive and knowledgeable community.

    Wishing you well

    Catriona

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story

  • Hi Briefly my story. Hindsight is wonderful I was on  ferry to Spain  mid February got into cabin and thought ouch my neck hurts oh bug I’ve pulled a muscle. 10:weeks later in Spain riding my bike I cycled 1110 km with Larry the lump in my neck. Got home mid May  a friend in Spain said Hazel promise me you’ll see a gp. Ok it did got appointment next day and 5 mins later was in the 14 day cancer pathway. Well that was a shock. Treatment started 14 July. So try not to stress . I had no symptoms at all swallow was Di e just LARRY the lump  

    re bad behaviour your brains in overdrive and everything )will seem accentuated but there’s no excuse for bad behaviour bugs. Stick with us  I had tonsil cancer lots if lymoh nides bu5 I’m still here  

    Hazelmx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember

    Hi Ichi

    T2N1M0 tonsil cancer.... finished chemoradio June 2023

    Like the others I am sorry people are being unkind.... many are afraid of the word 'cancer' ... with good cause....but that's no excuse for rudeness.

    Your oncology support team will keep you informed and look after you, follow the advice given by them and your cancer journey will be smoother.

    Best of luck

    Peter 

  • thank you Hazel, for your kind words, i am glad you are on the long road to recovery and 5 long years later, it must have been a shock to you when you were first diagnosed, especially as you sound like you were very active and healthy living and don't expect that kind of outcome when it is the case, i am glad you have beaten it and are getting on with living and enjoying life now