Hello all,
A bit confused but hopefully in the right place???? I have had an MRI, Ultrasound and am due a tongue biopsy under GA on the 14th Feb ( Happy Valentines to me). Already I have been so inspired by people's journeys and the sharing of knowledge. I am petrified and yet feel totally supported already from this site.
I am a totally positive person for the most part but would be lying if I said I did not have many moments of complete and utter fear.
We have just sold our house and have bought a house in Ireland ( long term dream) and this timing is a complete bummer!!! I like to keep imagining that the biopsy will show that everything is ok but...Why should I get away with a clean bill of health? Who do I think am? But it helps me to be positive.
I will have so many questions once the biopsy results are in. I do promise that I will update either way. So far , MRI shows nothing in Lymphs. Ultrasound shows saliva glands are clear . THe camera up and down my nose/throat shows a lesion on the base of my tongue. Something was mentioned about lingual tonsils but my husband , Nick, who was there to take notes got distracted ( by not paying any attention) so I am not clear on what they said.
I am 56 ( birthday today). Have had a rough ride in the last few years ( family bereavement) but generally in good health.
You all amazing and I feel like I may well be in good company.
Thank you all for your words of encouragement. You are so gracious. I have just got a message through to say I have an appointment on the 15th march . I assume this will be results day! Do you think they would actually have the results by now or more likely that they book dates in advance ,expecting that they will know by the future date? I can barely let myself believe that this could all be ok.
It is my official last date of work today. My husband has just secured his dream job in Ireland and we are so ready for some peace.
I lost my daughter to suicide 5 years ago. She was 19 years old and a first year student at the University of Liverpool. I just could not bear to bring any more sadness into our lives and this really does feel like a chance that we can all start to heal.
Please keep me in your thoughts and prayers and I will continue to do the same for you.
I will definitely continue to post and share .
Lorraine x
I have an appointment on the 15th march . I assume this will be results day! Do you think they would actually have the results by now
Yes. They might have them sooner. They might tell you over the phone. You could try 2 weeks from now.
It is my official last date of work today. My husband has just secured his dream job in Ireland and we are so ready for some peace.
I lost my daughter to suicide 5 years ago. She was 19 years old and a first year student at the University of Liverpool. I just could not bear to bring any more sadness into our lives and this really does feel like a chance that we can all start to heal.
Oh god Lorraine. My heart really goes out to you. No mother should survive her child. I can only imagine how devastated you and the family were and still are.
I wish you all the luck in the world in Ireland. The biggest hug xxxxx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Lorraine sending hugs you deserve all. The luck and happiness in the world. I don’t pray but I’ll talk to my plants for you and am sure Dani will talk to her bees. Fingers n toes x yiu get over to Ireland and have a great life.
Hugs Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Lorraine,
I’m thinking that your results might take longer than a few days, but a month until your appointment seems quite a long time. There might be various reasons for this (no clinic space, annual leave) but you could ask your CNS if there are any cancellations could you bring your appointment forward. Worth a try. The waiting is so hard.
I was so sad to hear about your daughter, that is something that no mother should ever have to go through, or ever wants any other parent to experience. You must be a very strong person to have come through that.
So, let’s think positive, think New Start, think Ireland! I’m not a religious person but if I was I’d be praying right now. All I can say is, put your trust in your consultant and their team. Whatever happens, they’ll do their best for you.
Sending the biggest of hugs, xxx
I would really appreciate all the chats with the bess and the plants. Thank you
x
Thank you so much.I understand that religion is not for everyone but I hope you all do not object to the prayers I am saying for all of you.
I will contact the hospital in a week and see if they can bring my appointment earlier.
Lorraine x
I would really appreciate all the chats with the bess and the plants. Thank you
They buzzed back for you
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
The plants nodded in agreement with the bees.
hugs Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I don’t know what to say . I got the best news I could have wished for . The biopsy results were all clear !!! I am overwhelmed and so full of gratitude for all the support you guys have given me . I can’t quite believe that all the worry and fear are over .
I hope that others that are searching for answers to allay their fears whilst awaiting results have a good outcomes too . I am sad that that not everyone will though x
I had prepared myself for a journey that at first felt completely impossible, but with talking with you all I began to believe that it was doable , albeit still a difficult one . I can’t thank you enough for taking the time to support me . I will never forget your kindness and will remain humbled by your strength
For the chats with the plants or the bees or good energy that was sent my way - thank you .
You are all heroes xx
Lorraine
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