Hello

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Hey all, hope everyone is doing well, I am in recovery from tonsils and neck lymp nodes removed. I am doing well but have a few side effects that’s is happening from recovery, if anyone is going through and not sure what to expect I can maybe offer some advice.  

  • well done.. Thumbsup

    Loz (63)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Hi Bones1981, welcome to the group. We are all here to help, so any advice you have will be very welcome.

    Ray.

  • Hi  

    Welcome to our community 

    How far along are you? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member

    Hi Bones

    T2N1M0 Tonsil cancer   Finished Chemoradio June 2023.

    Thanks for the offer, always open to advice from fellow patients....

    Great to read that you are doing well.

    Stay in touch .... all input is very welcome.

    Peter

  • I finished treatment end of September 

  • I finished treatment end of September 

    Did you avoid radiotherapy? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • No, I had 2 full days of chemo spread out over 3 weeks and 30 days of radiotherapy 

  • Ah. You must be coming up to your post treatment scan. How are the side effects? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Just had the scan, it not come back yet but said they not hoping to find anything, with everything healing slowly it’s only really last 2 weeks I starting to feel some side effects, tiredness seems to come and go but havr swelling in the neck which stiffens the neck but is not painful and do struggle to swallow certain foods.

  • It’s a slow plod to a new normal. If you have lymphodema please do mention it to your CNS and get a referral to a lymphodema clinic. The swelling can become hard and permanent if you don’t get it dispersed. If it’s just mild gentle stroking towards unaffected lymph nodes will shift it. I have a video in my blog. 
    Radiation fatigue is normal and will improve. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge