Hi. I had adenoid cystic carcinoma in my mouth 13 years ago. It was removed and I had a 4 week course of radio therapy. Apart from being left with an ora nasal fistula for which I have to wear an obturator everything has been good. I’ve continued to have an annual check up with a CT scan of my thorax every other year. However 3 weeks ago I had a 5 day headache with badly disturbed vision which was diagnosed as a particularly nasty migraine. However, despite the headache almost disappearing I continued to have vision problems so last week I went to the opticians. Because I had lost part of my field of vision she thought that I had had a stroke and wrote to my GP. I got a same day appointment with a nurse practitioner who prescribed blood thinners and statins and did an urgent referral to the stroke clinic. However the day after my vision became much worse and my son took me to A&E where I had a CT scan of my head. This ruled out a stroke but indicated 2 areas of swelling, which because of my history and the fact that my blood results didn’t show any sign of infection, they strongly suspect is cancer. I have been put on 8mg of Dexamethasone daily for 10 days, am having a full CT scan on Monday and also need an MRI scan of my head. I have a good support network and whilst my head is in a bit of a spin I am so worried about my 31 year old son who has recently split from his girlfriend and is back home with me. Any advice?
Hi Lyndylou52
Sorry you’re in this fix. The only thing you can do for yourself at the moment is to keep busy and don’t worry about other people. Your son should be tremendous support now he’s home. He’ll have you to think about rather than the predicament he’s in. Get him involved in what’s going on with you in a positive way? Walking the dog doing shopping taking you out and about? I hope the dex has at least made you feel a little better in yourself.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
My biggest dread is leaving him alone and I don’t think anything will be able to ease that anxiety.
No but kids surprise us.
My daughter suffers from a significant health anxiety.
I’ve lost count of the number of times I’ve had to scrape her off the floor.
When I was ill with an NG tube snaking out of my nose she told me I was beautiful.
Despite all the previous dramas I realised that likely she will be ok when I’m gone.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
He is trying his best but was already suffering from depression. He shops, we take turns in cooking
PS
He sounds a lovely boy. Its good you’ve got each other
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
