Hello everyone,
I've just left the ENT office and am confused. I've been having neck pain and headaches a a slightly swollen left lymph node for about 6 weeks. I looked inside my mouth and noted a swollen tonsil. Went to GP and EVENTUALLY ended up on the 2w pathway.
ENT assured me it was nothing, tonsils looked fine. Ultrasound showed all seemed fine. BUT today after MRI scan the registrar told me there was some suspicious tissue around the tonsil and just below? She gave me two options, leave it and see how it goes!!!!!???? Or have surgery, take out the tonsils and send them for a biopsy with a camera investigation. This seems to be two extremes? Is this mormal? Has anyone had this and been diagnosed as not having cancer of the tonsil?
I am scared and wished I'd asked a million questions I now have!
Thanks for reading, any advice appreciated
I’m flabbergasted that you have been given the two options
The registrar needs to seek advice from their boss
Me? I’d be straight in for surgery ASAP
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
This seems to be two extremes?
Indeed
Look at it now in case it’s cancer or go away and come back when you’re sicker? Struth!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi like Dani am astonished please. Please get the biopsy if we may ask how old are you ?
mine was tonsil cancer
hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Lou
Spent 2 years with an enlarged tonsil, firstly diagnosed as throat infection, told to gargle with salt water, small lump on my neck appeared a year later GP told me it was blocked saliva gland, again told to gargle all would be OK....infection would not go away...I kept on at my GP ( felt like a hypochondriac) and was finally given an urgent referral to ENT....result T2N1 tonsil cancer.
Good luck
Peter
Hello, all of you lovely people who have taken the time to reply. I am 41, non smoker. Most importantly mom to twin boys age 13!
I have absolutely ripped her hand off for the investigation and tonsillectomy and signed the paperwork. She had a further look in my mouth using camera and her hand (that was fun). Them offered me two options. She said it will be in first two weeks of January.
Thanks again for all your advice. I've done the right think, just wondered why she'd have said just wait and see? Does she assume this isn't likely to be cancer? Very strange.
Lou
Sounds awful Peter. I hope you are okay now?! Did you have any pain?
Hi Lou
No pain, just concerned that the tonsil was not reducing in size, if I had been given antibiotics/antivirals at first consultation and they had no effect on the swelling.... I would have suspected that something more sinister was present.
Peter
Makes total sense Peter.
I've also tried antibiotics and it did nothing! Hence pushing for 2w pathway. GP wasn't really up for it either. But I couldn't take the pain and he relented and referred me! Why is it so difficult!?
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007