Hi All
My name is Debbie I was diagnosed nearly 4 weeks ago with T3 right tonsil 2N now been upgraded to T4a3N +16we just celebrated my sons18th last week plus older son 26 and gorgeous grandaughter..
Saw oncologist at Sheffield yesterday (Scary scan pictures)and dont know which way is up today ……. feels like hell aready and I havent even started Radio/chemo !! Delay now is waiting for dental apt then need MRI CT Petscan and mask fitting( sadly all reminds me of my dad who had GBM4 in brain died after 7mths).
Is anyone out there who has survived same cancer and any support would be greatly appreciated x
Forgot to say Dyslexic please expect creative spellings
Hi Debbie,
Im really sorry to hear about your diagnosis.
my husband (53) was diagnosed on 15th August with N2C unknown primary squamous cell carcinoma P16 positive. (TXN2C MXSCC).
I don’t have any advice on the cancer itself - but I certainly understand your anguish at having the world as you know it turned upside down.
we are trying our best at taking one day at a time. We’re not worrying about the what ifs. We’re focusing on what we have to do each day, as we work towards the milestones. Our milestones this week are. 1…. Telling our Grandkids (13 & 7) that Grandad will be going into hospital. 2…… The tongue based mucosectomy & tonsillectomy & examination under anaesthetic surgery on Monday 11th September.
One thing I can add…. We’re based in Oldham & have been seen at Oldham Royal, North Manchester, Fairfield Bury & Wigan Infirmary. It will be 9 weeks from finding the neck lump to having surgery. We already know his Chemo/RT will be at Christie’s Manchester. So far the whole process has been dealt with really quickly.
so my advice as hard as it is…. One day at a time.
it just becomes overwhelming otherwise. Sending big hugs to you & your family 
Dave & Ange x
