Neuroblastoma

Hi Tazzer14 

Welcome but so sorry to see you here. 
I’ve found a previous thread for you. It’s a few years old but it might point you in the right direction  It’s here 

 Olfactory Neuroblastoma stage 2 

There are a couple of mentions of support groups that may still be active 

Hope this is of some help 

As you say, it’s rare and I can recall only a few posts here.

Waiting for post treatment scans is always an anxious time. We w all endured the worry so all I can suggest is you keep busy and avoid google. 
Taste should return but it takes time. Try different foods and if they don’t work abandon them and try again at a later date. It’s a real pity about your loss of smell as that is a huge part of taste. Hopefully that will recover somewhat too 
My RT was to my throat and it was six months before I could taste much and a year before I was happy with it but I’m over four years clear and practically back to normal. 
You will feel you again. One day at a time. Small steps and you’ll get there. 

PS

Have a read if this article about recovery, written by a psychologist involved with cancer care. It resonates with a lot of us. 
workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

Thank u xxx

Hi. Scanxiety is horrible. I remember feeling in limbo waiting to see if my treatment had worked. When I became very depressed I contacted Macmillan & I had 6 free phone counselling sessions. I found them very useful. I’m 17 months post treatment & as back to normal as possible. In the early weeks & months I felt that I’d completely lost myself & couldn’t envision ever feeling like myself again. But slowly, baby step by baby step I got there (& am still improving all the time). It’s a slow, frustrating road to recovery. Be patient with yourself & keep the faith.  

Thank u this is very helpful. And im pleased your on the road to recovery.