Newly diagnosed yesterday!

Former Member
Former Member
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Evening. So yesterday I was called in and told I had a Metastatic Squamous Cell Carcinoma in my Lymph node. I had prepared myself for the worst and whilst family have reacted to the news, I feel quite numb. It all feels a bit surreal and if it happening to someone else. Perhaps next week when the ultrasound, MRI, CT PET and teeth X-rays start it may hit home. Glad to have this community to fall back on for advice as this feels like a real voyage into unknown. Thanks for reading

  • Hi Bigdude67, welcome to the group none of us wanted to join, but as we are here, we all try to help each other. It is a big shock when you are told, what you are not wanting to hear. You will feel better about things when you get your treatment plan, and it gets underway. Bear in mind that the treatment we have, gives very good results, with high cure rates. Any questions just ask on here, someone will always help if they can. All the best.

    Regards Ray.

  • Former Member
    Former Member in reply to old biker

    Cheers Ray, much appreciated. Neil

  • Hi welcome from me we’re a friendly bunch alwZys happy ti help blog below might help any questions ask take it one day at a time you’ll get through it I did. 
    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Former Member
    Former Member in reply to RadioactiveRaz

    Thanks Hazel great to hear from you. Neil

  • Former Member
    Former Member

    Hi Neil

    Again welcome, everyone here has been there, done it and got the t shirt... and lots still are !!

    so they know exactly how your feeling and will help with any worries and questions you may have.

    Hope all goes well.

    Cat x

  • Former Member
    Former Member in reply to Former Member

    Hi Cat, thanks so much for reaching out. Neil

  • Hi Neil and welcome from me.  That was how mine was diagnosed.  As others have said one things get underway you will feel more in control, but right now it is a whirlwind.  Stay with us.

    Peter
    See my profile for more details of my convoluted journey
  • Former Member
    Former Member in reply to PFJTHS

    Cheers Peter, your not wrong! Will be glad once the scans kickoff next week. Thanks for reaching out. Neil

  • Hello Neil

    The uncertainty is horrible but once treatment starts we just slog through it. I found the support and tips on here invaluable, and less than a year after diagnosis I am almost back to my normal active self. Good luck! 

    Catriona

    PS more info in my profile

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 3 years all clear. See my profile for longer story