Surgery and Recovering Slowly

  • 2 replies
  • 152 subscribers
  • 489 views

I'm still reeling from the shock and somebody needs to thump me on the head to prove I'm sane. Had biopsies couple years ago of visible tumor under tongue and white stinging, bleeding massive sore eating up and over bottom gums, came back benign. Three years later; Throat feeling weird, burning on tongue and necrotized saliva and floor of mouth visible when looking in mirror. Note to self: Go to ENT, make them do another biopsy somethings wrong!  Four months later, throat, lymph nodes, most of tongue and entire floor of mouth removed! The doctor said and I quote, "At least this time they got a good biopsy." To say I'm angry that they missed it back then is putting it mildly. I'm now a Guiney pig for all the new and rising E.N.T. doctors at the local college....Be your own advocate and take charge of your health is my newly found wisdom unfortunately a little late.

  • o say I'm angry that they missed it back then is putting it mildly.

    so sorry to hear this. 
    We do have to advocate powerfully for ourselves I’m afraid. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Desiree. So sorry to read about your experience. Sadly since covid struck we’ve all had to be more pro active in our care. 
    if we can help just ask. 
    Hazel xx

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.