I'm still reeling from the shock and somebody needs to thump me on the head to prove I'm sane. Had biopsies couple years ago of visible tumor under tongue and white stinging, bleeding massive sore eating up and over bottom gums, came back benign. Three years later; Throat feeling weird, burning on tongue and necrotized saliva and floor of mouth visible when looking in mirror. Note to self: Go to ENT, make them do another biopsy somethings wrong! Four months later, throat, lymph nodes, most of tongue and entire floor of mouth removed! The doctor said and I quote, "At least this time they got a good biopsy." To say I'm angry that they missed it back then is putting it mildly. I'm now a Guiney pig for all the new and rising E.N.T. doctors at the local college....Be your own advocate and take charge of your health is my newly found wisdom unfortunately a little late.
o say I'm angry that they missed it back then is putting it mildly.
so sorry to hear this.
We do have to advocate powerfully for ourselves I’m afraid.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Desiree. So sorry to read about your experience. Sadly since covid struck we’ve all had to be more pro active in our care.
if we can help just ask.
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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