Cancer at base of skull

Hi and welcome to the community. It is soul destroying to have to face another cancer after the awful treatment for the first one. Joining the Carers group might help you to talk to others in a similar situation. There seems to be little back up outside hospital these days which is sad. At least you should be getting food deliveries from Nutricia I hope. Can your CNS suggest any practical help? 

Hello and welcome. Much like yourself I was ignored by gp practice for 4 months and treated for gerd. In the end went privately to get some,answers.

Throat cancer 30 radiotherapy sessions and given all clear last Sept. 3 weeks later tongue cancer followed by operation. 

You don't get time to celebrate also had peg feeder.

My husband was my carer he was so good.

Have all clear again now.

Good luck and try and stay positive 

Thanks for your quick response I have already joined the carers forum earlier when I saw it . When I mentioned the chance of any help or who to contact was told see your GP who has been totally useless

It's been a rollercoaster since diagnosis husband ended up in Intensive care after biopsy on mechanical vent as couldn't wake up after anaesthetic then after three rounds of chemo had seven weeks of chemoradiotherapy getting sepsis 3 from the end . Had pet scan which showed original tonsil soft palette cancer gone but now gone to pastures new . Inoperable but has started immunotherapy to hopefully slow it down . I try to keep positive but it's b##### hard as you can understand ,husband always been the strong one so finding it hard to accept my help . Thank you so much for your lovely message it feels like a big hug

Cardmaker23 said:

When I mentioned the chance of any help or who to contact was told see your GP who has been totally useless

Can you get your oncologist to kick the GP practice into action. Often a phone call works wonders. 
Do you have a Maggie’s near you? They have been a huge help to many. 
Also have  a look at https://theswallows.org.uk/

The charity is run by Chris Curtis a HNC survivor and they have a particularly strong carer section. 

Cardmaker23

There is a lot of good advice on here I'm 72 and almost a year post treatment. 

It was hard for my husband he did everything.  He doesn't show his feelings much and it takes its toll but you'll get there.

Still struggling with after effects. 

See if mcmillan has any services that can help xx