Good evening this is a bit of a repost that I did in the welcome group. I hope everyone is doing ok ️ I’m just looking for a bit of guidance before driving myself mad -
I was sent on the 2ww pathway for some general swelling in my jaw and neck on one side - not huge but you know, you become self conscious when it is there all the time. It’s been a few months ( October 22) and it’s slowly got worse. After my 2ww appointment I waited only three weeks for my mri - which I feel lucky to have been seen so quickly. But I can’t help but feel anxious though I know that being in my 20s it is a likely to be something else. The radiographer and assistant were so lovely during my scan but what made me feel a bit weird and anxious after leaving was the radiographer saying if I don’t hear anything in two weeks to chase and asking if I already had an appointment with the ENT consultant ( which I don’t ). From the letter previously sent to my dr he thought it may be a cyst that is a result of the lymphatic system not forming properly, but no idea otherwise as no hard lump to be felt just soft swelling all on the left side of my face and neck, in the last two weeks I have also experienced numbness on that side of my face. Just wanted to know what the wait times people are experiencing for results. I also just hope nothing gets missed, I’m quite anxious and also work for a cancer organisation so it’s probably fuelling the fire whilst also telling me it is very unlikely to be cancer. I also haven’t been 100 percent the last four weeks ( which I’m putting down the numbness to possible infection of some form ) so probably just feeling a bit sorry for myself and fed up I’m not knowing what’s wrong - as even though this time periods been short the swelling has been around since last year and I actively ignored it because I passed it off as nothing.
Any guidance on time lines or experience of mandible swelling would be grand haven’t found much from dr Google as other than mumps and broken jaw there isn’t much out there and well, it’s not mumps!!
Hi Luckyleft,
Fist of all, welcome in our little community, sorry to see you here, but this is good place to be if you have any questions etc.
Secondly, pls don’t read Mr. Google
I can imagine how are you feeling, i am 9 months post treatment from base of tongue cancer HPV+, but just try to make yourself busy, and try not overthink as you can just make yourself to stress. I know is easier to say then do it, but until you don’t have dr app and they don’t tell you what is going on, its better.
good luck and i do hope this helps ️ A bit
marta x
Hello Luckyleft
Waiting for results is a really anxious time, I know. Googling does not help but we all did it... Your MRI should pick up anything that's going on. I hope it's nothing but there's great support on here if you need it.
Sending love & luck
Catriona
September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story
Hi and welcome
The radiographer and assistant were so lovely during my scan but what made me feel a bit weird and anxious after leaving was the radiographer saying if I don’t hear anything in two weeks to chase and asking if I already had an appointment with the ENT consultant ( which I don’t ).
Radiographers are not trained to interpret the scans. That’s the job if a radiologist who will look at them and report their findings to your consultant. Pre Covid and pre strikes results were available to the patient in a couple of weeks. There are delays in reporting these days and we have to be proactive, hence the suggestion you chase up.
Waiting is horrid but it’s all we can do. Fingers crossed you get an answer soon.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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