New here to

Hello. I’m 1 year post treatment for tonsil & lymph node hpv 16 positive. I had a PEG & used it from week 4 of treatment. I had 6 weeks of chemoradiation. 6x chemo & 30 x radio. 
Treatment is challenging but doable. My husband was an amazing support. He drove me to & from treatment each day, came to every appointment & took notes, made me meds charts, called GP/hospital for me when I couldn’t speak, cooked, cleaned, walked the dogs…& kept me going when I wanted to give up. This forum helped me immensely. Reading other people’s experiences, picking up advice, asking questions - all of these things helped me feel less alone. Show it to your husband. There are so many of us here to help & support you both. 

Irish13 said:

any help and advice appreciated

Hi Donna and welcome. BLOD  has said it all. My husband was the same.......the physical and mental support that only a partner can give 

I was 67 when my treatment started. Have a look at my profile and you can see how I've got on four years down the line.

My advice...often difficult for a man to accept, strangely....us girls are much better at this sort of thing ...... IS:

Don't be brave. If something isn't working tell the radiographers who are his daily liaison with the rest of the team. Take the pain killers by the clock in advance of the pain. If it's not enough get something that does work. I was on short and long acting morphine and got through. I must say I wasn't in really acute pain once the analgesia was sorted, just sleepy, miserable and feeling sorry for myself ....a bit!

A day at a time.

All the best and stick around. There is lots of support here

Hi. He will get through it both Dani and Blod have said everythjng my blog below might help. 
one day at a time was how I did it.
My hubby did everything drive cooked cleaned looked after me. 
I was 61 when diagnosed tonsil cancer 7 affected  lymph nodes. I did it he can often men try to be brave and don’t use the peg i or n g tube it’s  there for a reason use it when needed. 
Hazel x

as any questions someone will get back to you.  

Hi Donna,

As i read your words it sounded all so familar.  I'm Gail I completely understand your worries and concerns. 

My husband is in his fourth week of chemoradiotherapy. 

I had lots of questions and worries and one thing is for sure being on this forum is an excellent place to get support and information from people who have been or are going through similar if not exactly the same experience. 

It feels a mountain of worry and the oncologist and team always seem to give you all the worse scenarios of the side effects and treatment.  Try not to over think anything and work through each bit of information systematic.

My husband had to have 2 teeth out and a peg fitted prior to his treatment of 30 Rt and 6 planned chemo sessions. 

We are doing OK,  I'm just about to post our week 4 update. 

If you need to ask any questions just ask everyone here is so helpful and completely understanding because they just know how you are feeling. 

I just do everything around my husband so all he has to  focus upon is getting up, dressed and getting in the car to go for his daily treatment.  

From organsing his meds, food and now his protein shakes via his peg. I even keep a daily diary of food intake for calories and fluid intake.   

From what I have read everyone is so different but within similar boundaries. My husband met a guy who has just finished his 6 weeks and he is still eating and driving himself to treatment.. he's in pain and lost some weight but he's doing remarkable. So it varies so much. 

We just face one day at a time, made ourselves aware of what might come re side effects but focus just on today.  

Here if you need anything Donna. 

Gail xx 

Thanks Gail for getting intouch . My husband had 3 teeth removed ,peg gets fitted tomorrow and first round of radio and chemo one Thursday .we are both upbeat and will take each day as it comes. Hope your husband is feeling ok xx

Hi Donna.

Hope all goes well today with the peg fitting.  Your husband will be so thankfully he has this peg during treatment. Xx 

Hi Gail coming up to week 4 . Today my husband can’t swallow and extreamly sore mouth ,can he take meds through the peg 

Sorry Gail Thankyou for reaching out xx

Hi yes all medication csn go via peg. I had n g tube in and was reliant from week 3 treat for 6 weeks. If you can’t get soluble ones just crush in a little water. 
Hazel x

Irish13 said:

can he take meds through the peg 

Absolutely yes! All the meds we need come in liquid form. Just make sure his radiographers know tomorrow so that you can get a prescription filled straight away at the Hospital pharmacy with repeats organised with your GP