Carer of my husband

Hi GailH Say hello to you husband and welcome to the club , Post any questions you need answering here All the Best Regards Minmax 

• Hi to you Both! Welcome, it's full of helpful people here. The journey is hard but do able ,I found strength in reaching out to good friends. Also this fantastic site. I had 35 Radiotherapy same area, be aware that he may get sore,very sore and I got ulcers and thrush but both were treated as well as possible by my Medical team. Stay strong and ask anything you need. Regards, Wayne.

Hi GailH, welcome to you and your husband, to the group. We know how hard it is for both patient and carer, to go through all this. However, you will get through it, like many of us on here have,  any questions or worries you have, ask away someone will always answer if they can. The treatment time will pass quickly, and he will be on his recovery back to health. All the best.

Regards Ray.

Hi Gail and welcome. Stay with us and good luck to you both

Hi Gail,
I'm the carer too and so passing on info/advice and anything relevant to Mr Aotearoa.  It has been invaluable and has helped me through those tough early days and treatment.  Ask away if you have any questions - there's always someone to help or point you in the right direction.  Any problems - just post it here.

My husband has/had CUP (cancer of unknown primary) and had a secondary in one lymph node.  He had a double tonsillectomy and biopsies taken from all around.  Treatment was 35 x radiotherapy with 2 rounds of chemo.  We have a review/consultation next week when he hopes to get the date to have the PEG feeding tube removed (tried it a handful of times but chose to battle on with eating).  A little anxious already!

It's a tough road with lots of ups and downs.  But the outcome should be good and that drives you on.  Tick off the days and you'll both get there.  Hugs  xx

Thank you for responding it's good to hear from others who have been though similar experiences. Hoping your husband gets his peg removed soon. And your progress us swift form here on in. 

We are just starting our relationship with 'the' peg.  For us its the level of unknowns that creates the majority of the stress. So hearing how others went on with treatment/ side effects is helpful.

First chemo today and BP is very high...  Not surprising really.  No removal ops for us just biopsy and a couple of teeth out.  Whuch revealed p16 cancer and a lymph node with level 2.. Hoping the RT with chemo will do the work we need it to.  

A long road and trying to make the most of full meals while it's possible. And keeping as positive as possible.   I listened to Instagram of the wife of Bruce Willis and she described her daily emotions,  pain, grief and anger along with all the good moments, although  it's different scenario completely it pretty much sums up the roller coaster of emotions surrounding a cancer diagnosis.

Thank u. 

Thank you Ray for your postive words of encouragement.  Hope you are doing well yourself x 

GailH said:

Bruce Willis and she described her daily emotions,  pain, grief and anger along with all the good moments, although  it's different scenario completely it pretty much sums up the roller coaster of emotions surrounding a cancer diagnosis.

Have a look at my blog. The second last post about radiotherapy has a link to a patient’s video diary at the bottom of the post. 
Where are you by the way. There may be a support group you can join. Many are still doing Zoom meetings. I was at one yesterday and they look jolly useful. 

Hello GailH

I am going through a similar journey with my hubby at the moment, nearly 3 weeks post op, neck dissection 2 lymph nodes removed, robotic surgery to remove both tonsils and some tongue skin. Been a tough few weeks but he is doing well and improving every day. App on Monday will let us know what the next step is. This forum has been so much support to me. Not sure how much help I will be but here if you want to ask anything or just chat.

Paula  

Thanks Paula

Sounds like your hubby has had alot to deal with so far... hope he is healing well and the pain is settling.  I know my hubby was in alot of pain after his biopsy and teeth out. The mouth is aucha sensitive area. 

We are in our first week of chemo radiotherapy so far so good but we are of course early doors. Just tiredness.  I know my  hubby wasn't looking forward to his 1st chemo day but now he's done that he says he feels a bit better..  its just waiting for the side effects to kick in...  we've been told end of 2nd week into the 3rd... see how he gets on. 

Thank you for Paula appreciate your response.  Hope all goes well on Monday. 

Keep in touch when you've time xx