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Former Member
Former Member
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Hi all, where do i start. My brother was diagnosed last year with tongue cancer, he had it removed and his tongue re built with donor from his arm. He went through all that and completed 6 weeks of chemo, to now find out unfortunately it has spread to his neck, lung and spine! This is obviously not the news any of us wanted, and I’ve got to admit I am struggling! He has been told there is no cure just some prolonging treatment. 

  • Oh Bec I am so sorry.

    Sometimes there is hidden cancer right at the very beginning which is too small to be seen on scans. 
    Will he be getting immunotherapy? 
    Have you asked his oncologist if there are any trials he could be part of? 
    Best wishes  

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Bec  so sorry to  hear your brothers sad news, can’t add to Dani’s post, please ask oncologist if there’s any trials. 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Former Member
    Former Member in reply to Beesuit

    Because of an underlying disability and how he has struggled since the surgery they want to make sure he him self and his body can withstand anymore. He is back in 3 weeks to see if they can offer immunotherapy and one shot of radiotherapy  to his spine. I’m not sure how he would feel about trials. 

  • I’m not sure how he would feel about trials. 

    It’s worth asking though. There are some good results being reported. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Tough call after going through extensive  treatment, best wishes.