On Dec 23rd 2022 my mum was diagnosed with cancer of the jaw. I understand this is very rare so I’m keen to find if anyone else has dealt with the same it seems to be a wildly aggressive form. At the end of Jan they removed an 8.5cm tumour and reconstructed the jaw using bone from the leg. We felt some assurance that the lymph nodes were clear but the surgery was quite traumatic for mum (as well as us) and mum was left with a feeding tube for the foreseeable. She was due to start radiotherapy 6 weeks following.
After the surgery, mums condition did not improve and she quite quickly started to feel pain in the jaw again, followed by daily nausea and then double vision that took us back to A&E. scans revealed that the cancer was back but it seemed to become more aggressive than ever and is no visibly growing in her face. On Friday, we found out it has spread to the lung and now the only treatment options are to control it/ palliative and there is very limited time. My minds blown really at how quickly the situation escalated and I’m struggling to come to terms with everything. Mum is 70 years old next week, just due to retire and enjoy her life, I feel cancer has robbed her of this last pleasure. Nothing feels real and still hoping im going to wake up from this awful nightmare.
Hi Alice. I'm so sorry to read about your poor mum.
There are a few posts similar to yours if you put a search for Jaw Cancer at the top.
You might find another section of The Community which is Supporting somebody with incurable cancer a help
But do stick around, somebody might pop on
Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
