Anyone finished treatment on Pathos trial

There are a few. I hope they join in 

Misscjayne said:

As you will know if you’re  on it or completed it, it’s to trial lower radiation to see if better side effects?

That’s what the aim is

Do you know how many Grays you’re getting? 

Errrrrmmm not sure what grays are? 
I think getting 20% less than the normal I think 50 rads would that be it? 

Yes that’s it. Hazel and I have a friend who had four weeks treatment. I had six and 65Gy and hazel had seven weeks and 73 I think. 
Ask what dose your getting? 

A gray is a measure if radiotherapy like Dani said I had 7 weeks Monday to Friday every day 70 gray.  I couldn’t do the pathos trial as I had too many lymph node involvement.. 

Hazel x

Pathos involves having surgery too. TORS? 

Ok just had meeting with Macmillan nurse..

im having 60 grays for 6 weeks 30 sessions ♀️

Hopefully your side effects will be fewer. Fingers crossed. 

Just wanted to know how you are doing.

I've been offered the pathos trial. Had tonsils and some of base of tongue removed 2 weeks ago and that what hell.

Pathos Trial is more surgery to my throat and a neck dissection to remove 2 lymph nodes then radiotherapy. May still need chemo but hopefully not 

If I don't take the trial then it's chemoradition but no surgery 

I don't want either and how can I chose what's best?

How are you now ? I hope you are doing brilliantly.

X

Once I’d opted for TORS to remove my tonsil I was invited onto Pathos. I thought what the hell. In for a Penny…. etc etc. After surgery you are ‘randomised’ into one of three groups depending on the outcome of the surgery, I think. The bottom margin of my surgery was ‘a bit tight’ (at 1mm) so I was put with the Full Monty group - ie 67 Grays of RT with 5 concurrent sessions of chemo. HeyHo!  The thought of it was much worse than the reality in my case, even though it was tough going.

I’m on pathos and 8 treatments left, iv no regrets about joining the trial.

I had surgery first then radiotherapy no chemo

i wanted surgery coz I wanted it out, now on radiation it’s sore but plenty pain relief on offer x