First post

Hi Red 

welcome to the community but sorry to see you here. 
Thank you for the compliments. I think you’ll find that none of us consider ourselves brave or warriors. We do what has to be done to get through but we all help each other. 
I can’t help with the IBS so I hope somebody can. 
Is radiotherapy planned as well? 

Hi Dani, thanks for the reply. just waiting on appointment for scan then to go back hospital on 28th March for results. The plan was to have 6 weeks radiotherapy but suppose it will depend on how much the first 2 rounds have worked. 

Hi Red  Welcome from me as well to our small ,community group. Can’t help with  the i b s sorry, yiu can ask them to change your medication  lots of different ones . We are all started on yhe  cheapest ones.
I did have chemo cisplatin but was lucky had very few issues. If you do need radiotherapy only too pleased to help I had 35 sessions l

Fingers crossed results are good. RT is a real challenge but you’ll get through. Stick around there’s lots of help here. 
One thing springs to mind. During RT most of us end up on meal replacement drinks called Ensures or Fortisips as we can’t swallow. These are really high in sugar and I know a few folk here with IBS have had problems with them. It’s worth asking about alternatives right out the outset rather than be chasing for them if you run into trouble. 

Many thanks 

That’s gd to know about the ensure as they supplied those already. Going give the nurse a call tomorrow to discuss the alternatives to settle the stomach. 

Hi Red,

welcome… good luck with all. I had 2 chemo and 30 RT. 
can’t help you with IBS sorry, but here we are  

will wait to hear from you

marta x

Thanks Marta, hope you’re doing well now. Did you get any issues with acid reflux and gagging? 

Sorry on my late replay. No, not at all, but I felt sick all the time, vomiting etc. 

What did you do about the sickness and vomiting?