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Hi everyone, first post and just wanted to say how amazing you all are. Your posts give me hope and good advice.

I was diagnosed with cancer in sinuses in Jan and have had a rapid two cycles of chemotherapy done already. The last set finishing Sunday night.

I struggled the first week of the first cycle with ulcers and thrush and the dreaded fatigue. This time around am finding issues with diarrhoea, I also suffer from ibs and have been given anti sickness and antibiotics this time around. I’ve got the tablets (imodioum) which gives slight release however every time I eat it just goes through me.

What types of food is best to help with this.

Beesuit over 2 years ago

Hi Red

welcome to the community but sorry to see you here.
Thank you for the compliments. I think you’ll find that none of us consider ourselves brave or warriors. We do what has to be done to get through but we all help each other.
I can’t help with the IBS so I hope somebody can.
Is radiotherapy planned as well?

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Red1 over 2 years ago in reply to Beesuit

Hi Dani, thanks for the reply. just waiting on appointment for scan then to go back hospital on 28th March for results. The plan was to have 6 weeks radiotherapy but suppose it will depend on how much the first 2 rounds have worked.

RadioactiveRaz over 2 years ago

Hi Red Welcome from me as well to our small ,community group. Can’t help with the i b s sorry, yiu can ask them to change your medication lots of different ones . We are all started on yhe cheapest ones.
I did have chemo cisplatin but was lucky had very few issues. If you do need radiotherapy only too pleased to help I had 35 sessions l

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

https://oraclehnc.org.uk/signawaycancer

Beesuit over 2 years ago in reply to Red1

Fingers crossed results are good. RT is a real challenge but you’ll get through. Stick around there’s lots of help here.
One thing springs to mind. During RT most of us end up on meal replacement drinks called Ensures or Fortisips as we can’t swallow. These are really high in sugar and I know a few folk here with IBS have had problems with them. It’s worth asking about alternatives right out the outset rather than be chasing for them if you run into trouble.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Red1 over 2 years ago in reply to RadioactiveRaz

Many thanks

Red1 over 2 years ago in reply to Beesuit

That’s gd to know about the ensure as they supplied those already. Going give the nurse a call tomorrow to discuss the alternatives to settle the stomach.

Marta over 2 years ago

Hi Red,

welcome… good luck with all. I had 2 chemo and 30 RT.
can’t help you with IBS sorry, but here we are

will wait to hear from you

marta x

Red1 over 2 years ago in reply to Marta

Thanks Marta, hope you’re doing well now. Did you get any issues with acid reflux and gagging?

Marta over 2 years ago in reply to Red1

Sorry on my late replay. No, not at all, but I felt sick all the time, vomiting etc.

Red1 over 2 years ago in reply to Marta

What did you do about the sickness and vomiting?

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