Hello I am joining on behalf of my Mother ,she was diagnosed with tongue cancer in September 2022

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After having radiotherapy for 6 weeks she still cannot eat properly yet  so she is still being tube fed but even though its been a bad few months she is now starting to go out by herself and doing really well recovering from the treatment, we don't know the results yet as to how well the treatment has worked but we're initially told it's a 50/50 chance of getting rid of the very large tumour,her main struggle at the moment is lack of saliva it's really getting her down ,any suggestions to combat this please ,thanks in advance 

  • Hi. I have used Xylimelts at night (Amazon) & sugar free gum in the day. I have had 4 acupuncture sessions, auricular for saliva production plus regular acupuncture for sleep & relaxation. This week my mouth is noticeably less dry & eating is much easier as I don’t need constant water with meals. Over the past few nights I haven’t even needed the Xylimelts. For the first few weeks post treatment I tried lots of mouth sprays, gels & mouthwashes. The Swallows Head & Neck charity send you a free box of different sprays etc if you contact them. 

  • Hi Peppie54

    Sounds as though your mum is on the road to recovery that is great. I also found Xylimelts worked well at night. However I am unable to use them now for various reasons but have found that Biotene gel works well at night as a substitute. I dab a small amount on my tongue and it keeps my mouth moist for quite a long time. If I wake up with a dry mouth I dab another small amount on. Also sips of water help slightly. I have found that Biotene mouth spray works for a short time during the day but needs frequent application. It is certainly better than having a dry mouth. I get the Biotene products from the chemist.

    Lyn

    Sophie66

  • Hi and welcome.

    Well done your mum. Getting out and about is food for the soul after weeks of darkness. Giver her a hug from me.

    I am another fan of Xylimelts which are a little xylitol lozenge that sticks to your gum and slowly releases its ingredients to help keep the mouth moist. I use one at night but they can be used in the day too. Xylitol chewing gum is great for getting the salivary glands that survive working properly. Mint may be too strong for your mum but there are other flavours available. PUR make fruit and cinnamon flavours. Drinking lots is recommended which I did but I found using a water spray much better as it didn't wash any saliva away, just helped it along. Just as Blod did I found an acupuncture practitioner who knew how to apply auricular acupuncture. This really helped me along. I have details in my blog HERE and Here The second link has some interesting comments. If you email the Swallows Head and Neck Support charity they will send you a support box free which contains any number of mouth products Chris@theswallows.org.uk

    Best wishes

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi welcome from me can’t add much to what the others have said but I’m a huge fan of Xyimelts sugar free gum and I had auricular scut. I’m fast approaching 5 years and still use the xyimelts at night plus sugar free gum during the day. My saliva is much improved but night time csn still be difficult. 
    Hugs Hazel blig belie might help 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/