Very freaked out

8 replies
154 subscribers
895 views

Hiya

So i am 6 months post treatment for T2N0M0 cancer on my tongue. Surgery done in May 2022, following completion of chemoradio in Aug 22. Had my 3 months all clear scan in Nov 22. Only a week after my 3rd consultant review, yesterday I noticed a small ulcer on the same side of my tongue where I was treated. Very freaked out if it is a recurrence this quick. Have an appointment on friday with consultant. Lets see what he says but very very freaked out and worried sick.

Beesuit over 3 years ago

Ulcers are really really common after RT. I used to get a lot. Are you being a little too adventurous with your food? Try stopping the Duraphat for a few days and use an SLS free toothpaste like Oranurse. Chlorhexidine gel is good for ulcers like this.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Heinze over 3 years ago in reply to Beesuit

Thankyou Dani. Foodwise only having what I have usually....I didnt have any for the last 5 months and now this...Will get Oranurse and try that. I really do hope its only an ulcer.

Beesuit over 3 years ago in reply to Heinze

I bet you it is. I had the same cancer. I was plagued with ulcers for the first few months.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

RadioactiveRaz over 3 years ago

Hi I still get ulcers in radiotherapy site evrn now. Do you have gelclair or yiu csn buy aloclair online. Try not to freak out please.
m Hazel x

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a webinar i did with Oracle explaining the process of diagnosis.

https://oraclehnc.org.uk/oracle-launches-new-webinar-series-to-support-head-neck-cancer-patients

Minmax over 3 years ago

Hi Heinze Its only natural to freak out sometimes as the mind goes into overdrive and thinks the worse. I have been down that road numerous times. You are doing the right thing getting it checked out which will become the norm in future , Good Luck

Heinze over 3 years ago in reply to Minmax

Thankyou all for calming my nerves down. The bumps I saw turned out to be my circumvallate papillae (taste buds) that were enlarged. Could be because of sore throat or acid reflux both of which I have. :) All good in the hood.

RadioactiveRaz over 3 years ago in reply to Heinze

Hi Heinze Excellent news now get on with living.
Hazelmx

Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo 3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life.
No questions too daft to ask.

I’m also an ambassador for https://oraclehnc.org.uk/

A leading head and neck cancer charity.

This is a link to a webinar i did with Oracle explaining the process of diagnosis.

https://oraclehnc.org.uk/oracle-launches-new-webinar-series-to-support-head-neck-cancer-patients

Beesuit over 3 years ago in reply to Heinze

Yes they can look alarmingly large. There’s a ring of them at the back of your tongue. Glad the news was good

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

More from this forum

Very freaked out