hello

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New to this group so just saying Hi. My sister has been diagnosed with tonsil cancer and is starting radiotherapy with a burst of chemo at the beginning and at the end. I think that bit was ok but they said she would have a feeding tube and it might be for life? is that common?

  • Hi Dinky and welcome to the community. Most of us have feeding tubes of some kind and 90% of them are temporary. Do you know what stage the cancer is? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dinky. Welcome to our small community forum. Sorry that you found yourself on here on behalf of your sister Hazel. I am almost 5 years pass radiotherapy for tonsil cancer. I also had 2 chemotherapy sessions and I had a nasal feeding tube fitted week four of treatment and it was taken out week three of recovery. Is there to aid us  while we’re going through treatment it’s very rare that anyone at all as the tube in for  life, if you want to give us a bit more info about your sister, would be a little happy to help my tumour   Size was T2N2NM I was also HPV 16 positive.

    mask away Hazel xx

    my blog below might help 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi, I have a feeding tube for life. Honestly, I don't like it but you get used to it. For me it is unsafe to swallow so everything goes down my peg tube, I miss food greatly but also I'm getting used to it. I hope that your Sisters tube is temporary, I can only share my experience. My motto is, " you don't know how strong you can be until being strong is your only choice ". Take care, Wayne.

  • HI Wayne Wise words and a great motto. I like it and so true.  All the Best Minmax