new here, so first hi 
Long story short 1st diagnosis 2014 treated with radio and chemo, god hated the mask for radio but worked through it, went to my happy place every time, snorkeling in Bermuda lol. slowly got my life back on track. Have a fantastic wife and older kids huge blessing. Got through to eating after initialy peg feeding, took a couple of years to enjoy eating again textures all felt different but got back there. Even enjoying KFC again, chicken was the hardest food to get back to. love my food drinking and singing (well thats what I called it 
) and eventually that happy day when you get the all clear 
Then 2021 7 years later got a reoccurrence. Due to having radio and chemo previously unable to go that route again so went in for salvage surgery. Went in Sept 21 meant to have graft from right forearm. So cancer area all removed then found vein required to keep graft living in right arm no good. so right arm graft laid back down, and took graft from right thigh. And tracky fitted. 13 hours in surgery.
4 days later and the graft failed at 8 in the eve so back down to the operating theatre the next morning old graft removed and new graft taken from left leg thigh. Another 14 hours in surgery followed up by 4 days in ice before going back to the ward. At this point being tube fed through my nose. After week 3 in hospital taken down to have a peg fitted. Could not go through the throat as too nervous of causing more damage so another 2 hour op under general. Opened up the stomach and inserted peg tube that way. Then 6 weeks after my ops out came the tracky. Cant work out what I hated more the radio mask or the tracky, but that was a damp good day when that came out I can tell you.
Got to go home and get in my own bath heaven I tell you. Then knock me back down sideways week and a half later end up getting an infection that turns into sepsis end up back in hospital for another two weeks with joy of joys another bl ###y tracky fitted under local anesetic, def don't recommend that one either lol. Anyway been home for a while fluoroscopy results not particularly brilliant. Keep getting liquid going down the wrong way am allowed two teaspoons of custard 3 times a day at the moment but have been told not to get my hopes up to high as may need peg to keep myself going but may be able to do small amounts of social eating food. Mash and gravy a few spoons of soup etc. Cant breath through my nose hate that, can't sing hate that more but still here and working on getting back to work in the next 2 or three months. Just need to concentrate on physio for right shoulder/ arm and leg strength. Its been a rough tough time but got to fight this and try and push on. Got a few questions coming soon but just thought I would say hi 1st so Hi all.
Hello Roy and welcome from me too. It hasn't been easy for you but I read you have found the strength to try. I'm not in the same place as you but I can imagine how defeated you must have felt. One of our own Common city Champs, Chris, is PEG fed and has just replied to somebody else about it HERE
Ask anything you want. Somebody here will know the answer.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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hi there. sorry i couldn't find how to start my own thread
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
