hi all I had cancer on my tonsil and am now clear 8 years. I have been trying to find someone who has also had it to discuss long term side effects, but i have been unsuccessful . is there anyone who has had the same thing?
i was very fortunate as it was found quickly and it was only small and hadn't spread. i had 30 sessions of radiotherapy and am free and clear.
when i was told of the side effects of the radiotherapy ie pain ,swelling , bleeding , not being able to eat and possibly being fed through a tube i thought NO WAY. so i saw a medical herbalist and explained everything and could she do anything for me. The answer was YES she gave me some herbal tea and i had it every day. the result NO pain or swelling or bleeding. in fact i sailed through the treatment and recovery. She called it her sore throat tea and i still take it if i feel a sore throat coming on.
i was so positive about my treatment and the whole experience i wasn't going to let it get to me.
i just would like to talk to someone who has had the same cancer as me to compare notes as it were about the long term side effects.
I've found her so helpful. She's pretty good at signposting other services and helped me find information local to me. She posts some useful stuff on a well known social media platform begin ng with TW.
One of the things that struck me was the number of people who were unaware of long term side effects. There is a lack of communication somewhere. It must lead to a lot of worry.
I hope you're managing OK. You've had bit of a ride...
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
