Hello. I spoke to some of you good people before Christmas when I was first diagnosed with cancer but until yesterday I had no clear treatment plan. Yesterday I got that and it's radiotherapy only to shrink the tumour but not get rid of it. I've been told I have months or up to two years if I'm fortunate. I'm currently in hospital having my eye treated as it became infected owing to not shutting because of the facial paralysis. I am so sad to think of leaving my family. I don't know how to cope
Hi AnnaMary. So sorry to read your news. We live with this fear all the time so mine are not just words. I really am truly sorry.
There is a group here in Macmillan for people living with incurable cancer. You might find joining them some help
Living with incurable cancer forum - patients only
I hope you find some peace and time to build memories with your family
Hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi
I'm so sorry to hear this. There is a forum here called Living with incurable cancer. It's strictly for people like us with a 'sell by date'
Everyone on there are lovely and so supportive, we are in the same boat on there so they will know what you are going through.
Don't forget the Macmillian also have a support line,
Cat x
Everybody's nightmare. My heart goes out to you and your family. There are no words just be kind to yourself and enjoy every minute. Thinking and praying for you. X
Thanks. It is a nightmare but I hope the radiotherapy will help for a while. Take care.
Hi AnnaMary So sorry to hear your news. Hopefully the radiotherapy can give you longer to make memories with your family. Hoping you aren’t too long in hospital.
if you have a Maggie s centre near you they are very good.
https://www.maggies.org/
hugs Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi AnnaMary. I've just been tagged in a reply to your post in the incurable cancer forum. It's got me thinking. Would you perhaps think about getting a second opinion from maybe The Christie or The Royal Marsden, maybe even about a trial? They wouldn't need to see you, they could just look at your notes in the first instance?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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