Our experience, and advice welcome

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  • Hi Miss fantastic. Welcome to the group. So glad your partner is doing so well and thanks for putting up a post to encourage others. 
    I can’t compete with all the stuff he did but I put my lack of neck burns down to the pure aloe vera gel I used after radiotherapy. 
    Regarding the lymph node. These can take a long time to disappear so if his oncologist is not worried you shouldn’t be either. 
    Best wishes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi welcome  from me. Always good to hear alternative s that people use. I was always going to burn my lymph node was so close to skin. But it doesn’t affect me just remember he will need factor 50 suncream on every time he’s out winter or summer. As for lymph node treatment continues to work as Dani says if oncologist not concerned you’ve no need to be. 
    As for fatigue yiu csnt fight radiation fatigue listen tk your body. Rest is needed if he tries to fight it it won’t get better. 
    hugs Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • he is deeply fatigued, but I feel these interventions have flattened the curve of awfulness,

    The radiation fatigue is due to the hit the brain stem takes from the X-rays as they exit the body. It will get better but he is likely to find there are days and times in the future when it poleaxes him. Rest is the cure. Time and rest. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you, that’s reassuring. Last day of radio yesterday so quite a milestone for us. Thanks again 

  • Thank you that’s useful to know. I didn’t know that 

  • Thanks so much for your reply. Luckily he can get all the rest now, finished radio yesterday