Partner waiting to find out

  • 40 replies
  • 148 subscribers
  • 2881 views

Hi all, my partner (29m) has been struggling with a hoarse voice, excess phlegm and has a swollen throat. He got an endoscopy through the NHS in the summer which showed clear and he was diagnosed with silent reflux and given medication.

Nothing worked and although his voice did get slightly better before Christmas it got a lot worse recently. I pushed him to go to a private doctor as we have the privilege to do so since we both work. 

He had his appointment today and they could see a mass on his right vocal chord. They have told him it could be cancer but it also could be something else. He will get a scan and biopsy soon but I am so extremely terrified. 

He is young fit and healthy otherwise and has no underlying conditions and has never smoked. He drinks a regular amount but not weekly or in excess.

Basically this is why I am here as I just don't know what to do and can't see how I will cope with the next few weeks of waiting.

Thank you for reading

  • Hi Dani, I just posted an update unfortunately they do think it's cancer 

  • Hi Midina. The waiting is the worst part. How old is your partner ?

     
    remember head and neck cancers do respond well to treatment, try to keep off dr Google please as you’ll only scare your self even more. 


    hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Hazel, he is 29, 30 in August. He is very fit and healthy otherwise, works out and I've never seen him with even a cold in 8 years so this is an insane shock.

    The doctor hasn't mentioned anything specific yet. The mass is on the right side of his larynx. He is very worried about how early it has been caught and very frustrated that he did everything right and went to the doctor and even asked to be seen by an ENT again in October and NHS essentially refused. 

    He has never smoked a cigarette in his life either and this all feels extremely unfair.

    Thank you for your response, I am trying to stay off Google but you're right the waiting is excruciating.

  • He is obviously very scared and upset and has expressed that he does not want to leave me. I have told him to not think like that but this is extremely hard.

    I know how hard it is but radiotherapy or surgery if indeed necessary and life changing is hugely successful. 
    I must say that when I was diagnosed I felt a huge burden in my husband and wanted it to be all over so that I didn’t get in the way of his future. So quite the opposite of how your partner feels. 
    My oncologist sat me down and told me that even though it would be a bumpy ride he would cure me. 
    Hold onto that. The surgeons and oncologists do this every day and they are good at it. 
    My first husband had laryngeal cancer in 1987 and had six weeks of radiotherapy. In those days I suspect they didn’t give as hefty or targeted dose because he had no side effects at all. Sadly it recurred pretty quickly and he had to have a laryngectomy. 
    He was a journalist and always the loudest voice in the pub. After his op he became the loudest laryngectomee in the pub. He continued to work unfazed by being a neck breather. 
    Im telling you this that even so long ago with more rudimentary treatment he was cured 

    Hopefully all your partner will need is radiotherapy to get better. 
    Don’t despair. Trust his team. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you Dani,

    What I really just want is to sit down with the doctor and find out exactly what stage we're at and what the treatment plan is. It's all a bit much to cope with right now seeing as it was basically a short phonecall to say it probably is cancer but no other information. Don't get me wrong I know the doctor is doing everything right and it has been super fast, I am just so terrified of getting the worst news.

  • Yes waiting is hard. We’ve all had to do it. Knowledge is power and before you do find out you imagine all sorts of rubbish. 
    Stay away from Google. Keep busy. It’s all outside your control and worrying about it makes no difference to the outcome. But you know that and it’s still hard. 
    If either of you are finding it hard to sleep then do get some mild sleeping pills from your GP. Lots of people here have and it’s made the waiting easier to bear. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • What I really just want is to sit down with the doctor and find out exactly what stage we're at and what the treatment plan is.

    These decisions are made by a Multi Disciplinary Team. This is made up of oncologists surgeons pathologists radiologists radiographers and various nursing allied health professionals. They generally meet once a week to discuss all the patients in their care. So you see it’s a big decision with lots of input. His doctor won’t have a clear plan till they discuss things. That’s why you have to wait. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi everyone, it has been a long couple of days but I have an update. My partner went in for a biopsy and because his airway is is very restricted they wanted to keep him in hospital overnight after the biopsy in case of any swelling.

    The head ENT nurse sat us down and told us what it could be including different types of cancer and what the treatment/outcome for each is. This was the first hard part.

    They essentially fast tracked the biopsy and we got the results the next day. As we were about to leave the hospital we were asked to wait by the same nurse who took us into a room and told us the biopsy results had came back as a squamous cell cancer and he needs a full laryngectomy as well as follow up radio and chemo therapy. This was quite devastating as I mentioned in my first post he is only 29 and this is life changing. He has been reassured by information he has been given but is still terrified for many reasons.

    He is home now and processing everything.

    The doctors have never seen this specific type of cancer in this area in someone his age but he has the best team available and they have a very high track record of success.

    He is very scared of the surgery which is 8/9 hours and is next week! He is however young fit and healthy and is best equipped for dealing with it.

    He will be in hospital for around 2 weeks following the surgery and the other treatments will come 2 months later.

    I would be grateful for any advice on care/larangectomy etc.

    1. Thank you
  • Hi Dani, I have posted another updated, I am not sure what is the best way to update a thread so I thought I would comment here too so you get a notification x