New here

• Hi Culo.   I'm new to the group as well but pre-treatment.   Someone will be along shortly who will give you advice.   

Hello. I’m 9 months post treatment for tonsil & lymph node hpv 16 positive   I too have a permanently dry mouth. I take water wherever I go & find chewing sugar free gum really helps. The best one I find is ACT  (from the States) , some mint flavours are too strong for my mouth so I carry packs of bubblemint, , strawberry, blackcurrant……..I use Xylimelts at night. 
I am trying acupuncture for saliva production - have only had 2 sessions so far, but will keep going. I can’t eat anything even slightly spicy. Dry foods need lots of gravy, desserts with cream. Is eating physicallly tricky or does it all taste horrible still?My treatment was surgery to remove both tonsils & part of tongue followed by 6 weeks of chemoradiation   30x radio & 6 x chemo    Is the swelling due to surgery?

Hi Culo. We've chatted on New to the Community. Glad you've come to say hello.

Swelling. Is it lymphoedema?

Have look at my blog. There are two posts on acupuncture. Acupuncture is a holistic treatment. It might be worth exploring it

Hi blod  I'm pleased  your doing well,taste  buds still not fully back swelling is due to surgery yes

Hi again  yes it's due to surgery please will check  your  blog  at thankyou 

Thank you 

Hi Culo welcome  from me, it sounds like lymphoedema have yiu spoke to your cancer nurse or ent consultant . Some hospitals have lymphoedema nurses that run clinics. Dani’s exercises in her blog have helped many people. 
Drymouth that’s a tough one I’m over 4 years post radiotherapy and chemo still have dry mouth at night  I use xyimelts have you tried those available online Amazon and others you pop one in at bedtime. During the day sugar free gum stimulate saliva. There’s also auricular acupuncture I had to pay for sessions but worth asking hospital. 
Hazel.

Hi radioactiveraz thank you will look in to it

Hi culo

Im about the same time frame as you a little more but did you have larynx problems read my profile it tell you a bit about me.

Im ok with dry mouth now has got better as ive gone along but is a work in progress and food doesnt taste excactly as i remember but its not that bad.

We do have 2 put up with a lot of change but we still here so its worth it and will get better in time.

Stick with it on here loads of great people with lots of different experience any questions feel free to ask ill help if i can.

Good Luck

Chris

Hi Culo 

Soz forgot i have lypmphoedema too ive was sent to a lymphoedema clinic which was excellent and has helped me no end

The lady i was under was lovely she put me on a two week course of lymphoedema massage and messured my skin for fluid retention did me the world of good would recommend to talk to you macmillan nurse or doc see if they can get you an appointment in your area it will be worth it trust ne im so glad i went

Good Luck

Chris