Hiya :) not sure if im writing in the right bit to say hello hopefully i am lol

Hi Mandy tell us a bit more about your diagnosis then we can help? Yiure not loopy ut a natural reaction to cancer. Where are you being operated on to start with ! Have yiu been told what sort of cancer you have ?

Hazel x whose definitely loopy x

Hiya hazel I have squamous cell carnicoma,mouth cancer it's underneath and by the side of my tongue and in my neck they want to do a neck dissection,take all my teeth out and do a free flap thing  I also have panic disorder so I have already convinced myself in not gonna make it through the surgery as I am also on warfarin I feel like I am saying a lot very quickly I apologize

Hi Mandy no youre making a lot of sense. Will tag a lady who has been through the same hopefully she will get back to you and she may be able to pass some more info in to you.  Plus look on here   https://community.macmillan.org.uk/members/panch 

As long as they know about the warfarin I’m sure they can make allowances so remember to tell them all the medication you are taking  

hugs Hazel x

https://www.youngtonguesglobal.com/

this may help as well as staying in here. 

Hi Mandy

i won’t pretend that this is an easy process to go through but it IS absolutely doable 

it is certainly major surgery, but if nothing else do try to eat as much protein as you’re able in advance. It helps healing.

I had a Hemiglossectomy over 2 years ago now and am happy to answer any questions you can think of.

I’ve also pulled together a document trying to prepare people for what the surgery entails.

Why don’t you pm me?? 

Hi Mandy.  The surgery is tough - in face any treatment for these cancers is tough, but completely doable. 

I've had 5 operations now for various bit and pieces relating to my cancer.  They abandoned the surgery on my tongue so I can't really say how that may affect you.  I've had 2 neck dissections and recovery from them was quite easy for me.  That is not always true for everyone, but with most surgery there is initial quick healing followed by slow and steady progress over a period of many months to get to a place where you have recovered as best as you can.

Your surgical team will be on top of all the issues you have raised - don't be afraid to ask them anything so they can put your mind at rest.  In many cases your anaesthetist will be your best friend.   Hope it all goes well.

Hi Mandy - welcome to the team no one wanted to play for :-)

I had a 3/4 tongue removal for an aggressive SCC, double neck, flap from left arm, temp tracheostomy, grafts and the subsequent recovery. The surgery (is sadly) quite common and the process well trod. Certainly not high volume compared to other conditions but very well established and performed by leading consultant surgeons and teams across the world. Surgery itself was "quick" for me (16hours for them but again, normal - they have a lot to do). We are all different but based on averages you will be awake and aware pretty soon after the finish and probably in a bed side chair within 24hrs, out of special care in a week and working towards discharge in a total of 3-4 weeks (remember, just averages and you may be faster/slower and there is no right or wrong). 

I have been surprised by some of the positive progress I made and annoyed/frustrated with some of the negatives.

Feel free to pm or ask on here, there are no silly feelings or questions.

Thank you peter,I appreciate your message I just have so many things going around in my head right now it's actually driving me crazy,I got to a point where I seriously believed it will be the surge that kills me it was horrible I almost refused but I somehow got myself out of that and started focusing on the positive things people were saying,trying to anyway lol,my op is in 4 sleeps as they y and I'm feeling much better about it now because of the messages that have been written to me on here,I'm sorry for the long message I actually talk a lot too I thinks it's showing in my messages o,thank you again for your message it's much appreciated

Ps.sorry about all the smiley faces I don't know why that has happened I will get that looked into

Hey,

Why don’t you dm me?

I’ve prepared a “fact sheet” about hemiglossectomy, neck dissection & free flap surgery - well, my experiences!

I don’t seem to be able to message you