Still Surviving (Must be a bonus!)

HimSteve welcome to our club that no one wanted to join. Well done on managing to work as well I am niw 4 years post treatment tonsil cancer with several affected lymph nodes,We are all different in recovery as we are in treatment. I was n g fed from week 3 treatment then from week 3 recovery just manage sti hold my own in swelling ensures. As I say ti everyone  it’s a marathon not  a sprint. Have yiu been prescribed carbusistine to help thin the mucus phlegm I was it did help. Fingers x for the video fluoroscopy I haven’t had ine but know a few who have and eventky the majority regain their swallow. Are yiu still doing the swallow exercises even now I still do mine whenever I’ve a spare 5 mins. Good luck with scan and resukts keep popping in here we’re  all,in this together. 
Hazel x

Hi buddy, I'm almost a year post Treatment ,Throat Cancer,Tonsil and under tongue. Had 12 and a half hour surgery which was heavy and 35 Radiotherapy which has damaged my soft palate. Still can only swallow liquids and smooth soup as solids go into my lung with silent aspiration. It's a bummer for sure bud,I used to be a fine dining chef. But my only hope is doing the exercises so I do them. Maybe in another year I can swallow puree foods is my hope. Stay positive man and accept it may take a long time. But hey! We are still alive Brother! Cant beat that!! Wayne.

Kashasteve said:

Everyone keeps telling me that I am coping very well, but I don’t think I am. Sorry to be so negative!

Hi Steve. I'll try to deal with this bit. Have a read of this article by psychologist Dr Peter Harvey After Treatment

Do a few copies and let your friends and family read it. It might help them understand how you feel

I hope you manage to get rid of the stomach tube soon and that your scans are clear

Hi Dani - thank you for your kind words and advice. I Just read and printed out the article. I will get my wife to read it when she gets home. I have my appintment on Tuesday for the swallowing test. Hopefully they will be able to see what's going on. Steve x

Thanks Bud. I will try to be more positive - I realse this is a long journey - I just didn't realise how difficult it would be. Yeah Still alive and greatful for my lovely wife!