Hi, just recently been diagnosed with throat cancer , im keeping positive though ️
Was wondering if anyone had any recommendations/ tips/ or anything really in dealing without a voice , I didnt realise the impact it would have on me not being able to communicate via my voice, im finding it very frustrating (nothing I can do about it I know) but how have other people coped
Xx
Hi Ms Marvel
Hello welcome to this very friendly forum. Sorry about your recent diagnosis with throat cancer and your struggles with no voice. I understand how this can impact life as communication is a big part of us. Some tips I can share from me and how I have got round things - I would let people that need to know about your problem and to make things easier for you to ask them to text or email (I know it sounds obvious) and you could write things on the texts what you would find helpful. You could let people know that when they visit to talk to you ask them to stay close when they are speaking and keep eye contact with you as you can respond by your own hand signing or nodding for yes and no or writing, they can also try to read your lips. Encourage them to ask questions so you can respond with nodding for yes and no. It is really surprising how people adapt to help. Carrying a pen and paper is good, I write in short text style for quickness. Also I write in quite big font as people may not have their reading glasses with them. When I go to the shops doctors pharmacy people are really good when they understand I have a problem. I move my head as to so no and do a speaking action with my hands and they are quick to help and give me full attention. I sometimes write or use my hand to try to sign. I can speak but I am difficult to understand. I have in the past made a small custom made card using a label from word and had this printed then laminated which read something like sorry unable to speak and used this too. If you are expecting a phone call have someone there on speaker phone and have pen and paper ready so the person there can communicate for you.
I hope you find some of this helpful
Best wishes
Nicky
Hi and welcome from me too. What sort of throat cancer do you have? I had base of tongue cancer and never lost my voice.
Nicky has given you some great tips. I hope you stick around here. There are lots of great people sharing their wisdom and love.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Nicky,
thank you for the tips and advice, I have already used a few of your suggestions and will definitely try others .
I really didn't realise how much it affects your day to day , simple things like answering the phone, so frustrating
But thank you xx
Hey Dani,
I have a left vocal cord tumour, go back to hospital tomorrow to go through my treatment plan, probably will have radiotherapy as that's more affective to help my voice return.
I unfortunately have had radiotherapy before (Jan 2021) this was for a diagnosis of a brain tumour, fortunately this was benign and the treatment was just to halt its growth as it was located next to my optic nerve. All's well and stable with that at the moment .
I do have fantastic family and friends support but it's also good to be able to speak (pardon the pun ) to other people who are going rhrough similar circumstances so thank you for your response
Xx
Ms Marvel, I found apps on my phone helpful when I was in hospital and unable to speak. You write and it speaks . I can't remember the name unfortunately but Google it for help. Wayne.
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