My cancer diagnosis

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Hi everyone, I was diagnosed  with squamous cell carcinoma, ( tonsils and neck ) on March 16th 2022 , I am now 2 months post treatment, chemotherapy and radiotherapy , feel exhausted, scared, lonely a whole mix of emotions, I was made redundant from my jo.b in April and unfortunately  my relationship of 6 years has just ended, my family have been absolutely amazing would never have made it through this if it wasn't for them, just feeling a bit lost so I thought it would be good to talk to people who have been though the same .

  • Hello Shaz1. Sorry that you find yourself here but it’s very friendly with lots of good advice. Fatigue after treatment does seem to affect most people.  I found the first few months after treatment finished very challenging but slowly this improves. I am coming up for a year now and feeling much better. Don’t push yourself too hard.  One day at a time.  I am glad your family is around you.  Sending all best wishes.  Lizzie123 

  • Hi Lizzie123, thanks for your reply,  that's definitely my new saying for the past few months , 1 day at a time .

  • Hi there and welcome to the group that no one wanted to join (me included!). So sorry you have to do it tough save for your family, I am a bit behind your journey so welcome your insights into the journey so far. 

  • Hi, thank you for your reply, I spent most off my treatment  plan in hospital, mainly due to weight loss, vomiting, nausea the treatment  itself was pretty bad after week 4, don't want to go into to much detail as I wouldn't want to frighten anyone as our journeys are different, if there is anything  specific you would like to ask I will tell you what happened  to me .

  • Hi Shaz and welcome. So sorry you have been through the mill physically and personally 

    The day at a time mantra along with food is fuel got me through. It’s a really tough period now. 
    Have a read if this article. Print a few copies out and pass them on to friends and family 

    https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf

    It really does get better

    Stick around. The forum is full of tips to make recovery that little easier

    Best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Shaz, just after treatment is a very scary place to be, after all the attention we get during treatment, then it just stops and you feel like the rug has been pulled from under you. The treatment is a real assault on our body and it takes the wind (putting it mildly) out of us which  all takes alot of healing. You are still very early into your recovery, and you will have good days and bad days,  1 step forward 2 steps back, but you will get there. It's good that you have family to help. Don't feel alone you can always post on here with any worries  you may have, we are all here to help each other. All the best to you and your family.

    Regards Ray.

  • Thank you , feel better already .

    • Hi Ray, thank you for your reply , I will definitely stay on here, its very reassuring to hear that it gets better as some days it doesn't  feel like it  .
  • Hi Shaz1 welcome from me I am now 4 years post treatment for tonsil cancer with several affected lymph nodes. You are in the early stages of recovery as others have said   The mantra  eat to live and not live to eat got  me through tge first year. Along with food is fuel . I can still remember standing at kitchen window fixing my eyes on a fixed point in garden and taking 15 minutes is more to sip  an ensure if  hubby wasn’t looking tipping some  in the sink and shouting I’ve drunk it all. It is one day at a time some  days 2 steps forward and one back. You’ll get there but it’s a marathon not a sprint in many cases. Now  you’ve found us stick with us we’re all willing to help. 
    The Peter Harvey piece is excellent I still refer back to it and if you look at this one it might give you some  ideas on eating when times right. Please see your g p many in here have had a mild course if anti depressants our treatment is pretty brutal as we all know. 
    But at the end there’s still a great life to be had Sorry your relationship has broken up pleased you’ve family around you. 

    www.yumpu.com/.../cookbook-by-andrew-gaylor-head-and-neck-cancer-survivor-2022


    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Hazel, thank you for your kind words, I've had my feeding tube out for about 4 weeks, I'm drinking 2 ensures a day and trying my best to eat what I can although still quite painful , I know everyone's recovery is different but how long before you could eat properly?