Newly part diagnosed tongue cancer (T2) saying hi!

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Hello everyone,

Discovering this forum and reading many of the posts has been really helpful, thanks to all for sharing.

I am mid diagnosis (had MRI today), CT/Bloods Friday for a 2cm cancerous area of my tongue following biopsy (ouch!). Just trying to get my head around a relatively fit, non-smoking and low alcohol 55 year old male has ended up here. Genetics huh! 

Being in limbo for full prognosis is a bit challenging but I remain positive that this little bugger can be beaten!

Will try and add more value as my journey progresse.

x

  • Hi welcome to the club none of us wanted to join. Has the HPV virus been mentioned lI too was for had cycled 1100 km non smoker non drinker   Now I’m 4 years almost post radiotherapy for or tonsil cancer happily living my life. HPV oral cancers  are on the increase nothing to do with genes. Please ask about HPV status and let us know. Remember our cancers are eminently curable treatment tough but end results are good. Please keep off Dr Google you’ll scare yourself silly. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thanks Hazel - yes they are screening for HPV

  • Hi GeneSimmons

    Guessing you are maybe a big Kiss fan if so rock on.

    Sorry to hear about your cancer diagnosis. It is always a shock and it takes a while to get your head around it. Like many others on this forum including you I was also quite fit a non smoker, non drinker looking after my health including regular visits to the dentist and all the other checks to try and keep on top of any health issues. Just as well that I had regular dental checks as my dentist was the one that picked up the cancer when I was 59.

    Life can be a ‘beach’ sometimes and throw you some curve balls and then it goes in a direction that you had not foreseen.

    I have been on this journey for a while now and thanks to my wonderful medical team have come through treatment including several ops and radiotherapy twice and am enjoying my life to the max.

    It can be hard at the beginning of the journey but you will get there.

    Ask any questions you have to the forum as someone here will have experienced something similar.

    Best wishes for your treatment.

    Lyn

    Sophie66

  • No worries. HPV was mine and many others on here. Come bsck on with any questions the waiting is by far the worst part. Once you’ve the facts and treatment plan in place everything falls into place. If we can help we all will.

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Welcome from me too. I'm a three plus year survivor of tongue cancer. Had a review just yesterday. Stick with us , we all help each other get through and understand what's happening and why at a more personal level than our team can explain. Whereabouts on your tongue is the cancer?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks! I believe it is to the right (as I look out) and sort of on side and to rear... 

  • Thanks for replying, appreciated,

  • Well I thought the tongue issue and love of rock went well together :-)

  • Surgery might work alone then. Fingers crossed. 

    I believe it is to the right (as I look out) and sort of on side and to rear... 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge