Tongue cancer

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Hi my son has recently been diagnosed with cancer in his tongue. We are still waiting for the tests for staging and prognosis. I have been taking him.back and forth a and e for the past 8 months and they basically dismissed us. He also has a movement disorder dystonia. The trauma caused by his disorder lead to the cancer forming. He is 23. I am the only support he has. His father and brother are taking a back seat as usual.

Any Information would be appreciated

Thanks x

RadioactiveRaz over 3 years ago

Hi Crysta sorry you’ve found yourself on here on behalf of your son this link may help you as well as fellow suffers on here.
https://www.youngtonguesglobal.com/

My cancer was tonsil cancer so I’ve no first hand experience of tongue in someone so young.
Hopefully the rest of your family will step up for you.
The above group also is also on social media you should find the link in the info above.
All I can say is the surgeons and oncologist s in head and neck cancers are brilliant and the results can be excellent. I’m 4 years post treatment this month. Don’t despair the waiting’s the worst part. The fear of the unknown
Hazel x

Hazel aka RadioactiveRaz

My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

2 videos I’ve been involved with raising awareness of HNC and HPV cancers

https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

https://oraclehnc.org.uk/signawaycancer

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