New Here.... Hello

Hi Steve oh dear at least you’ve found us now ! You’re in the early stages  if recovery Tell us a bit more have your a feeding peg ir nh tube fitted ? I had n g tube fitted week 4  of treatment and by week 3 recovery it was out and I was maintaining weight by orally drinking 6 endures a day and trying bits if plus drinking 2-3,litres of water every day. Giid is fuel was my mantra csn you swallow my blogs below might help you. Get back to us with bit more info. As fir mucus di yiu have a nebuliser? 
4 stone bet they dieticians were on at you ! Mine weee I lost less than a stone 

Hazel x

Hi Steve. It’s never to late. 
At three weeks you’re only just out of RT which has a residual effect for 2/3 weeks after you finish. 
Lethargy is normal. Your body has taken a real pasting and it’s going to take months to recover. Slowly slowly a day at a time 

How are you eating? 
You can help the mucous along with sips of water or maybe even a nebuliser or steaming your head over hot water 

It usually goes all of a sudden though it can hang around for a while before it does. 
Gentle exercise keeps up your muscle strength and keeps you sane. 
Have a read of this.

www.workingwithcancer.co.uk/.../After-the-treatment-finishes-then-what.pdf

It might help. 

Tell us a bit more and we will all pile in to help. 

Hi Steve the saliva secretions are getting to me too, I also have lymphodeama in my neck I finished my treatment end of April and I've only just found this wonderful site so it's never too late,  I've been using a facial spa to help with the secretions I think it's starting to feel bit better.  Like you I've lost over 4 stone which hasn't gone down well with my dietician she calls me every 10 days for updates,  are you managing to eat at all yet? I pick at bits, the recovery is very slow but it is getting better week by week take care

Hi Kazz, Not able to eat a thing yet and not really able to drink much orally either. I'm now almost 4 weeks post-trearment. People are telling me not to worry or rush it but I'm also vomiting every couple of days which is undoing all my hard work. Time for a hospital visit I think.

Thank you Dani, I think the worst bit is that I am so far removed from the me I knew. I live alone and was only just getting used to that. So nobody to clean up, motivate, support or cry on. Some people are proving their value.  Most are proving that I should no longer value them. Pretty low right now which again, just isn't me

You poor thing,  it is very very slow the recovery it can be gruelling but maybe phone your cancer nurse or team for some insight and for some support take care x

Hi give your cancer nurse a call. Our treatment is pretty brutal it’s not uncommon for a mild course if anti depressants to be given. Maybe yiu need ti see dieticians as well. In meantime thys cook book night give you some ideas it’s written by a head and neck cancer patient. 
Hazel 

www.yumpu.com/.../cookbook-by-andrew-gaylor-head-and-neck-cancer-survivor-2022

I am new to this forum and have no advice to offer but do hope matters soon improve for you. 

Hi csteve.  Well done getting through treatment.  I found the weeks following the end of treatment extremely difficult.  I was totally tired out, lot of pain when eating, very low mood etc etc. I never thought it would end…..but it does.   We have all had some sort of treatment on here and we all get through it at some point.  I am nearly 11 months now and life is much improved.  It is very difficult in the beginning. Not easy for you living on your own.  I am sending you all best wishes.  Lizzie

Kind of you to say so. I'd love to say I hope you're on this forum in error but if not, I wish you well too.