Left tonsil and left lymph node.

As a more general note this morning for the first time ever experienced the want to go but can’t experience. My food intake on Tuesday was a little on the huge side as well which according to the nurse was probably a reaction to the steroids. Anyway I achieved success in the end but it was a palaver and any detail would be TMI.. needless to say I will be saying a short pray this evening to the lord laxido asking for deliverance in the morning.. sleep well all.

Get used to it. It’s certainly one of the less pleasant side effects, though manageable with Movicol, Laxidol, whatever. Take loads and loads of fluids too - I’m 8 months from treatment, though still on heavy duty painkillers, and downing sachets if the stuff daily in the hope of some “regularity”. Happy days!  

Thanks M.

im not trying to put them down and there have been some really good people there. I just wish they’d stick to real life experience and suggestions/recommendations as we do here. 
Guess I sound like a right old moaner, but I’m really not. I was the most positive person with the diagnosis and treatment until the last 8 weeks - I wish I’d stayed up with the Christie people in Manchester. I reckon I wouldn’t have had half the issues that I have had here, but hindsight is a great thing. 
Back to sleep - hopefully! Night all! 

Montus said:

As a more general note this morning for the first time ever experienced the want to go but can’t experience.

Yep...keep the Laxido going. I had two a day regularly but you can take more without dire consequences. It says so on the packet. Lord! I still have some in my paraphernalia box (which was a drawer at one stage threatening to become a cupboard.)

As off early this morning I placed a very strange order on Amazon which will put there algorithms to the test trying to work out my current shopping pattern. Some of the “go with suggestions” where rather eye opening.. 

Don’t pay for  laxido. You should get it free on prescription 

Hi Dani 

picked up a very large box today.

I have a few friends that are Dr’s and they have given their thoughts on dosing including the so called “sending the miners” in. 

T

All

Just  to let you know I ticked off the first week of treatment yesterday and had the first weekly consultants team meeting. In general pleased with progress, happy that I am keeping up a mild exercise programme (walks and bike work), diet etc ok and sensible social distancing.  There was one topic of discussion which I am sure will not come as a surprise. 

Personally this week has  been a bit more hectic and tiring than maybe I expected, but then again I didn’t really know what to expect. Having done lots a scuba in the past helps with being able to relax on the radio therapy table, regulate the breathing and get in position quickly so these sessions fly by. 

As it is very early days I am not feeling really any side effects to speak off other than a bit of late afternoon tiredness, the obvious and maybe a mouth that has a tinge of plastic to it rather than metallic.

On a plus point we also had a staging discussion and based on the revised definition for this disease it was confirmed as stage 1 which I thought was a nice way to end the week on.

In addition, a by product of the steroids has helped my hand heal faster and I might even be able to play a golf knockout match this weekend.

Thanks again for all your help and on we go to week 2 which starts with a double zapping on Tuesday..

best wishes

T

All looks good, T

Best wishes for week 2

At least you have a decent respite till your last chemo...and stage 1 is brilliant. With a bit of luck you'll get some Christmas dinner down you.

Enjoy your golf

That would be nice.. There are also a couple of little people keeping an eye on me and one is very keen for me to recover so I can take him to the football again by Christmas..