Hello

Hi verbena. Sorry to hear about your dad. 
Just make sure his team knows how bad he’s feeling. I’m afraid these side effects are largely unavoidable for a lot of people but they can be eased. 
How far along is he and where is he being treated ? 

Are you getting support from his GP? And has your father a feeding tube? That would make life much easier for him. 

Hi Verbena. Welcome from me sorry to hear about your dad. Please make sure his team are aware of his issues.Proton beam is the latest cutting edge therapy we all have various issues ,but the teams do need to know what’s going in with your dad I presume he’s in one of the trial s? His he at Christie’s or London ? 
Has Daninsays has he a feeding tube has he needs to keep hydrated and fed .

Hazel x

Thank you Beesuit. I have now emailed his team  with my concerns.He was diagnosed in early March and was scheduled for surgery but it was changed to radiotherapy. Next week sees the start of another 4 days of treatment, although he has a consultation this week to see what’s happening. He’s receiving palliative therapy. 

Thank you for replying. Dad’s in Scotland and receiving treatment at Ninewells, Dundee. I will ask about the feeding tube as that now may be needed. 

HubYes it’s not unusual for the majority if us to have a feeding tube at some point. I wasn’t aware ninewells in Dundee had a proton beam machine has he been travelling to Manchester for it ? 
Hope something gets resolved for him. 
Hazel x

Verbena said:

He’s receiving palliative therapy. 

Do you mean the doctors can’t cure him but can treat him? In which case there should be a whole palliative team including your GP to support you all. Do ask his team at Ninewells to start this up if they haven’t already. 

There is a Maggie’s at the hospital. You might find that useful to help you all cope too. 
Have a look at their website. 
www.nhstayside.scot.nhs.uk/.../index.htm
Let us know how you get on and a big hug to your Dad.