Pain

I always struggled to aspirate but I reckoned that if the feed didn’t come back up it was ok. Putting 10ml or so of warm water down the tube before trying to aspirate usually did it though 

Local anaesthetic gargle is about the best you can get. You could try doing the same with oramorph. 
It is painful. You can’t eliminate the swallowing discomfort entirely but it will get better. My tube was out after four weeks but swallowing was still painful and I relied on morphine for quite some some. 
The Flamazine should sort your neck pretty quickly. Just hang on. 

Of course if you are worried about the position of the tube I’d contact your CNS to see if the hospital needs to check it. 

Thanks Dani

im sort of thinking maybe better to take the ng out and just have the supplements, I know they’re awful but I will see it as medicine., x

Hi Elaine what you’re feeling us lijke Dani said what we all felt after treatment the radiotherapy is at its peak nothing will really make it better I curled up in bed and slept a lot watched trashy tv. I couldn’t even read.. I used to get  Hubby to put warm water through tube if I couldn’t aspirate  it. But if you feel it’s moved contact c n s. I was on oramorph for at least 10 weeks along with co codomol. Our treatment is pretty brutal to say the least 

It does take time. I thought I would never eat again. 
hazel xx

Elaine.  If you can swallow the supplements then get rid of the tube would be whst I would do. I vomited up my tube twice. Both times I pulled it out of my nose to finish the job. The first time I had it replaced the second time I didn’t bother. 
Swallowing glass is just what it is. I looked into my throat at the end of treatment ( too scared before) and I was quite shocked at what I saw. We heal though and usually very well. 

Thanks Dani and Hazel

i can’t open my mouth wide enough to see the back of my throat. I can see the side of my tongue though and looks awful sloughy broken down mess. Like you say, I’m also scared to look! Been too painful to talk today. So I’ve been started on pregablin to go with oramorph and cocodamol. I also had a nurse visit who pulled back my ng as it had migrated further in by about 5-6 cm!! I can aspirate it now. So yeah, I’ll keep popping the drugs, chilling with Netflix and in time, as you both say, it will improve. 
was advised by the nurse to try manuka honey and hot water to drink. Hot fluids seem to be quite comforting. Tends to be tea and hot chocolate. So I’ve ordered some manuka to try. She said as well as soothing has antiseptic properties? Let’s hope it tastes ok 

thanks again ladies 

Elaine x

Nite nite. Get some rest 

Hi Elaine one day at a time baby steps , we all get there n the end. It’s a marathon nit a sprint. 
Sleep when your body’s tells you. 
Hazel x

Hi Dani and hazel

may sound daft but ever tried bonjela on the mouth lesions??? Can’t seem to get on top on pain and I wondered ??  Thanks x

Hi Elaine I can use bonjela niw but wouldn’t have even dare to try it for first  2 years.  I was prescribed gelclair it’s quite expensive e about £70 for a weeks supply but my oncologist insisted my g p prescribe if. I still get it now as ulcers can pop up admittedly I get one box a year now. 
have you tried rinsing with lukewarm water salt snd baking piercer 1/2teaspoon to a litre of Luke warm water. Gargle with soluble aspirin rinse and spit ? Don’t swallow it. 
there’s something Amazon sell alclair I’ve used that as well but not early on in treatment. I had an ulcer the full length of my tongue for at least 10 weeks. 
Please be careful with bonjela it stings even now but I can cope   Have you checked you’ve not got oral thrush ? 
Hazel x