Mouth tastes awful

Former Member
Former Member
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Hi I've been on & off this forum over the last couple of years & always found it really helpful. 

I have an awful taste in my mouth, like sour milk.

My surgeon says its not my mouth, & when I Google it, it suggests acid reflux.  I don't have reflux unless it's symptomless.

I finished 6 weeks of RT & 2 doses chemo in Nov 2018 (T3N2bM0). I've had this taste on & off for some months but it's getting worse. I have regular CT scans as on follow up from a drug trial, & am not concerned its cancer but does anyone else have this?

Thanks

Cathy

  • Yes. Me. Reflux is right. I went for  a private Gastroscopy and I have a tiny sliding hernia but I think that’s a red herring. Lots of people getting RT to the mouth and throat end up with reflux. 
    Mine flares up now and then. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to Beesuit

    Thank you thats very helpful- do you have symptoms?

    Cathy

  • Mouth tasted sour till I did something about it. Watch my diet. Take aloe vera juice and melatonin at night which is oesophageal/ gastric  mucosa protective. 
    With a bad flare I got really nasty heartburn. 
    Get a pH of your saliva. If it’s acid all the time it might be silent reflux. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to Beesuit

    Great thank you!

  • Hi Cathy66. I get silent reflux, which makes the back of my throat  sore, from time to time, I take gaviscon advance for it, which is very good. Like Dani said it is very common after RT. All the best.

    Regards Ray.

  • Former Member
    Former Member in reply to old biker

    Thank you!

  • The other thing to consider is burning mouth or tongue. That's quite a common side effect of RT too. That can give the impression of an acid taste in your mouth.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Former Member
    Former Member in reply to Beesuit

    Thanks yes, I often burn my tongue.

  • Hi Cathy I have  silent acid reflux plus burning tongue. I’m similar to you finished august 2018. I have learned to identify my trigger foods which for me are cheese tomatoes anything  acidic or citrus. Cheap chocolate is a big no no fir burning tongue. My tongue goes scarlet. Plus a lot of fermented foods aren’t any good. I csn do soft cheese hard cheese my favourite I have to balance the pain against the pleasure. If that helps. 
    Hazel x
    Z

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Former Member
    Former Member in reply to RadioactiveRaz

    Thanks, do you take anything for it? I've just bought some aloe vera juice but I need to be careful with other things as I'm on levothyroxine.