Food ideas?

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Hi 

looking for any tips on food and drink. 
I’m  5 weeks into radiotherapy and have NG tube, feeding overnight. I really want to eat and drink but struggling with pretty much all food. Hot chocolate is the only thing that goes down well. Fizzy drinks I can’t manage, nothing citrus, everything tastes foul. I’m wasting so much stuff as I think, ooh I’ll try that but once it’s in my mouth that’s it-done! Thanks Blush 

  • Hi Elaine sadly at 5 weeks it’s par for the course. I was n g fed totally from end if week 3 . At the most is coukd sip flat Diet Coke or sip bittkes water. It’s wasn’t worth the effort and pain to try and eat. Use your tube lIf anything soggy weetabix and I mean soggy. Half of ine took me 45 min in the end I stopped trying as it wasn’t worth the effort. Rely on n g tube that’s why you’ve had it fitted.

    yiu need calories so that’s the best way of getting them all mine plus water and meds came via that. 
    Remember it’s not forever, as for wasting food that can go in for a good while .my hubby put 2 stone on eating my leftovers he’s a Yorkshire lad doesn’t do waste !

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Have you tried yogurt, ice cream , mashed potatoes with butter and/or cheese.Soft cereals like weettabix…porridge with golden syrup or honey
    At this stage you need small meals with lots of calories. To be honest it’s going to be trial and error to find what is palatable but you are nearly at the end now so keep going.

    WIshing  you all the best x

  • Thanks Hazel

    i keep thinking what’s the point trying it’s just so abnormal isn’t it, not eating yet soul destroying at the same time. 
    I put a stone on in weight in 2 weeks with my ng feed. Still waiting for dietician to call to discuss!! I reduced my feed from 2000cal to 1500 cal because of the increased weight and I thought I’d have spare calories to add in bits of food, its just all unpalatable xx

  • Thanks, yeah tried those things. Golden syrup may try that though as honey is tasteless at the mo Xx

  • Hi Elaine. Because if the pain our mouths and throat endure it’s really hard to even try to swallow water.I took the attitude the n g tube was there for a reason to keep me alive. The sheer pain of trying to eat ti be honest wasn’t worth it. 3 weeks into recovery I took the decision to start to maintain my own feeding schedule .Dont stress  about trying to get a few 100 calories in. Many other cancer suffers can continue to eat but head and neck patients have their own issues. Use the feeding tube please . There’s  time for you to start introducing food when treatment finishes .Yes eating us such a social pleasure that’s denied to us for a while but it’s worth it in the end,

    hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Elaine...try some proper honey which has a bite to it. PM me your address and I'll send you a jar.

    I found porridge a little difficult at first but semolina hit the spot.

    Add full fat Philly to scrambled egg. It makes it creamier and softer.

    BUT the others are right. Everything is going to taste rubbish for a while so if you find something you can manage just get it down.

    If not then use your feeding tube and forget eating for a while

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks Dani how do I Pm my address?? Honey would be fab thank you! 
    I tried a few mouthfuls of tinned semolina yesterday and wasn’t too bad but needed some jam in there. 
    never thought of Philly with scrambled eggs! Thanks 

  • Yeah you’re right Hazel xx

  • Thanks Dani how do I Pm my address?? Honey would be fab thank you! 

    I've sent you a friend request. Just accept that and we can PM each other

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Probably this will be more useful in the coming months than right now, but worth bookmarking for future reference.

    https://sprinkleofsalt.co.uk/

    Community Champion Badge

    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/