My husband is 10 weeks post radiotherapy and chemo.

FormerMember
FormerMember
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My husband was diagnosed with cancer of the tonsil and 2 adjacent lymph nodes. He was operated on last September. He started 33 sessions of radiotherapy on the 20th December combined with 5 once a week sessions of chemotherapy. By the time he finished he was unable to eat and very dehydrated. He was prescribed nightly drip of glucose, sodium and potassium. Nurses came in night and morning (we live in France) and this continued for 5 weeks. He had the mucus problem and very dry mouth. He managed to sip water and high protein drinks and eventually managed to eat a little. After 4 weeks it was suggested that he had a feeding tube but he refused! He is now very much improved and has gained a little weight (he lost 14kilos)  but eating is still a great problem. He still has 2 high protein drinks a day and I am trying to feed him little and often. It’s a struggle as some days he can manage something and then other days he can’t. What is the timescale for getting back to a normal eating pattern or will this never happen?

  • Hi River. Sorry your husband has had such a struggle. Generally we are told that the better nourished we are and the less weight we lose the faster our recovery. 
    I had an NG tube in by week 4 and list very little. 
    What we tend to find here is that folk are beginning to eat soft foods by 6 weeks and have definitely turned a corner at 12

    I could eat well at six months though taste remained a problem for well past  a year 

    But everybody is different. It’s a slow journey and improvements continue past two years. 
    Do you have access to good replacement drinks? Your husband is going to need 3K Calories a day. 
    If not make shakes with fruit ice cream and peanut butter. Add cream  butter and eggs to everything. 
    Ih and be rigorous about oral hygeine

    He will get there. Just at his own pace a day at a time sometimes backwards but he will get there. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi River3

    please trust things will improve.  I am 6 months from RT snd can eat most things (with water).  I was very down in the early weeks as I had a lot of pain and nausea but at 4 months things got a lot lot better.  I still have very dry mouth do always need water to eat and sometimes I still feel a bit sicky but on the whole it’s not too bad at all.  I wish your husband well and sending you all best wishes. 
    lizzie

  • Hi river. I’m 3.5 years post treatment fir tonsil cancer with several affected lymph nodes. I’m only 5 ft snd 9.6 stone u was told daily 85 g if protein and 2000 calories by any way j could my n g tube was a lifesaver for me at week 3 inti recivery I code ti take the n g tube out as was due a replacement. That meant I had to eat enough ivwas on 6 ensure drinks a day which gave me 1800 calories gradually introduced soft foods he will get there there’s no quick way it’s day by day blog below might help

    hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to Beesuit

    Thank you for your input. He gets 2 high protein drinks daily on prescription. I add cream and butter and constantly have to keep encouraging him to eat as he tends to forget! As you say it’s a day at a time. 

  • FormerMember
    FormerMember in reply to Lizzie.123

    Thank you for your encouraging reply. He does take water all the time but thankfully very little nausea. We will get there!

  • Hang on in there. He’s done the hardest bit 

    A day at a time. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge