Hi All
My husband had a neck lump for a few months and after much nagging from me - he started this journey at the beginning of this year.
He has had:
2 x Neck Ultrasound
2 x MRI with contrast
1 x neck biopsy
1 x MRI
1 x PET Scan
At first, they thought the neck lump was a Branchial Cyst. Due to his age (61) and with the PET scan showing FDG avidity in a tonsil and some lymph nodes - they decided to do a tonsillectomy and a panendoscopy on 18/3/22. The biopsy from the tonsils came back negative. A conservative neck dissection was done 25/3/22.
Appointment with MDT team 7/4/22 - they confirmed the lump was secondary cancer and HPV+ positive - but no cancer in the lymph nodes they removed. They are not sure but think the primary is at the very back and base of his tongue
He seen the maxillofacial dentist the same day - x-rays done and full check-up. The dentist explained what radiation treatment does to the mouth and that he will be under his care for 18-24 months.
The consultant then booked him to have TORS (transoral robotic surgery) to try and locate the primary - this is being done on 20/4/22. They explained that they want to find the primary before doing the treatment plan as if they can locate the primary then the radiation treatment will be less and more targeted otherwise the full neck will be treated. No mention of chemotherapy.
I would love to hear if anyone else has experienced - or knows of anyone who has had a similar diagnosis as my husband.
Written with a very heavy heart but staying positive as I know the journey is long...
Jackie - newbie to this
-*
Hi Jackie. Welcome to our community. Your husband seems uncannily in the same shoes as one of our forum members, Peter.
I will tag him for you and I’m sure he will be along with his story
Meanwhile have a look at his bio here
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
