Concerns

FormerMember
FormerMember
  • 2 replies
  • 152 subscribers
  • 369 views

Hi all I'm new here, I was diagnosed 2 weeks ago right tonsil base of tongue.Had CT scan and mask made last week PET CT scan this afternoon. Treatment starts Easter Mon 30 courses of radiotherapy and 6 weekly treatments of Chemo. Really not looking forward to all the side effects this treatment can cause.

  • Hi Birchy. Sorry to see you here but you’re in a good place for advice and support. 

    Really not looking forward to all the side effects this treatment can cause.

    Operative word is ALL. 
    Nobody gets them all and any you do get can be mitigated. They don’t happen all at once. Day by day is the way to get through this and you will. 
    Stick with us. There’s lots of help here. No question is silly. There will always be somebody to answer. Rants and bad language are allowed and encouraged too 

    I’m three years clear of radiotherapy. I have a blog linked below this post that might give you an overview. Also have a look at  profile. He has a great diary that’s worth looking at. 
    Best wishes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Birchy welcome from me I am 3.5 years post radiotherapy for tonsil cancer with several affected lymph nodes happily living my life. Dani’s guven some good advise any questions just ask we will try to help 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/